The Knowledge Exchange Blog

The official blog of The Knowledge Exchange from Idox

A road less travelled: celebrating Gypsy, Roma and Traveller History Month – part 2

June is Gypsy, Roma and Traveller History Month (GRTHM), which aims to raise awareness of and promote GRT history and culture.

It is widely recognised that raising awareness of different cultures is a key part of addressing prejudice and discrimination.

In this post – the second of two for GRTHM – we look at the inequalities and discrimination that GRT face across education, employment and health.  We also highlight work to address these inequalities and raise awareness of GRT communities’ rich cultural heritage.

GRT communities experience many educational and health inequalities

The recent House of Commons report, ‘Tackling inequalities faced by Gypsy, Roma and Traveller communities’, sets out a comprehensive review of the available evidence across a range of areas.

In education, Gypsy and Traveller children leave school at a much earlier age and have lower attainment levels than non-GRT children, and only a handful go on to university each year.  They also experience much higher rates of exclusions and non-attendance.

There are many reasons for this – from discrimination and bullying, to a lack of inclusion of GRT within the educational curriculum. There are also cultural issues to be addressed within the GRT community itself.

Scottish Traveller activist Davie Donaldson has spoken about the discrimination he faced in school where a teacher refused to “waste resources” by marking his homework because he was a Traveller, who she assumed was “not going to do anything with his education anyway”.  He also discusses how many Travellers within his own community felt he was betraying his roots by attending university. This clearly illustrates the multi-faceted nature of the issue of supporting GRT children in education.  The Traveller Movement addresses this and other related issues in their recently published guide to supporting GRT children in education.

Health outcomes for GRT communities are also very poor compared to other ethnic groups.  Their life expectancy is 10 to 12 years less than that of the non-Traveller population.  Maternal health outcomes are even more shocking – with one in five Gypsy Traveller mothers experiencing the loss of a child, compared to one in 100 in the non-Traveller community.

Poor health outcomes can be partially attributed to the difficulties that many experiences when accessing or registering for healthcare services due to discrimination or language and literacy barriers.  There is also a lack of trust among GRT communities which can result in a lack of engagement with public health campaigns.

Historic fear of engagement with public services

Indeed, there is a historic wariness of public services among many in the GRT community.

In the 1800s, many Travellers had a well-placed fear of the ‘burkers’ – body-snatchers looking to provide the medical schools with bodies for dissection.  Travellers felt particularly at risk because they lived on the margins of society.  There are many Traveller stories about burkers that have been passed on from generation to generation.

Similarly, a fear of social services intervention also exists, following the forced removal of children from Traveller families.  Some were taken into care, and others were deported to be servants in Canada or Australia.

Being aware of these cultural issues, along with the historic criminalisation and continued discrimination that GRT communities face, can help health and social services to understand and empathise with the GRT community when reaching out to them.

Poor employment outcomes and a lack of target support

Gypsies and Travellers were an essential part of the economy in the 19th Century and early 20th Century.  Many were skilled tinsmiths, silversmiths, basketmakers or other crafters.  They also played an important role as seasonal agricultural workers – for example, in the berry fields of Blair and farms of the north east of Scotland.  They moved from place to place, and bringing news and selling and trading their wares.  In the days before roads and motor vehicles, they were a lifeline for rural crofting communities who may have been many days travel away from the nearest settlement.

Time has rendered many traditional Traveller occupations redundant, and today employment outcomes for GRT groups are generally poor.

While more likely to be self-employed than the general population, the 2011 England and Wales Census found that Gypsies and Irish Travellers were the ethnic groups with the lowest employment rates, highest levels of economic inactivity, as well as the highest rates of unemployment.

However, unlike other minority groups, there has been no explicit government policies that support Gypsies or Travellers to enter employment or to take up apprenticeships and/or other training opportunities.  Many Gypsies and Travellers have also reported being discriminated against by employers, making it more difficult for them to find and stay in work.

A lack of robust data

There is a lack of robust data about the different GRT groups in the UK – even something as seemingly simple as how many GRT people there are.

This is because most data collection exercises – including the Census and in the NHS – do not include distinct GRT categories.  If an option exists at all, often it conflates the different GRT ethnicities into one generic tickbox, with no way to differentiate between the different ethnic minorities.  This is an issue that is being increasingly addressed and there are plans to include a Roma category in the 2021 census.

However, there are also issues with under-reporting.  Many people from GRT communities are reluctant to disclose their ethnicity, even when that option is available to them.  This stems both from a lack of trust and the fear of discrimination.

So, while the 2011 Census recorded 58,000 people as Gypsy/Traveller in England and Wales, and a further 4,000 in Scotland, it is estimated that there are actually between 100,000 to 300,000 Gypsy/Traveller people and up to 200,000 Roma people living in the UK.

Raising awareness of GRT culture

While this all may make for some pretty depressing reading, there are some promising signs of progress.

From Corlinda Lee’s Victorian ‘Gypsy Balls’ – where the curious public could pay to come and see how a Gypsy lived and dressed, to Hamish Henderson catalysing the 1950s Scottish Folk Revival with the songs and stories of Scottish Travellers – there have been attempts to promote Gypsy and Traveller culture among the settled population.

Today, organisations and individuals such as The Traveller Movement, Friends, Families and Travellers, and Scottish Traveller activist Davie Donaldson strive to promote awareness of and equality for the GRT community.

The recent Tobar an Keir festival held by the Elphinstone Institute at Aberdeen University sought to illustrate traditional Traveller’s skills such as peg-making, and there is a wonderful Traveller’s exhibition – including two traditional bow tents – at the Highland Folk Museum in Newtonmore.

There are even more events planned for GRTHM – including an exhibition of Travellers’ art and photography at the Scottish Parliament.

The hard work may be beginning to pay off – just last week, the government announced a new national strategy to tackle the inequalities faced by Gypsies, Roma and Travellers.

Using knowledge to fight prejudice

While there is without doubt an urgent need for practical measures to address the inequalities that the GRT community face – such as an increase in the number of authorised sites available – addressing the fundamental lack of awareness and knowledge of GRT culture is a key step towards eradicating prejudice towards GRT communities.

As well as raising awareness among the general public, there is also a need to for people working in public services – from health and social services to education and even politics – to have a better awareness and understanding of Traveller culture and history, and how this affects their present day needs and experiences.

Gypsy, Roma and Traveller History Month is an ideal opportunity to address the huge gap that exists in society’s collective knowledge about the GRT way of life, their history, culture and contribution to society. All of which can help to combat the prejudice and discrimination that they continue to face.


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A road less travelled: celebrating Gypsy, Roma and Traveller History Month – part 1

Traditional Scottish Traveller bow tent at the Highland Folk Museum, Newtonmore

This month is Gypsy, Roma and Traveller History Month (GRTHM).

GRTHM aims to celebrate and promote awareness of Gypsy, Roma and Traveller (GRT) history, culture and heritage, and the positive contribution that GRT groups have made and continue to make to society.  It also seeks to challenge negative stereotypes, prejudices and misconceptions associated with GRT groups.

Over the next two blog posts, we will raise awareness of the many issues faced by GRT communities in the UK today, and highlight some lesser known aspects of GRT culture and heritage.

Gypsies and Travellers are not a homogenous group

One common misconception is that Gypsies, Travellers and Roma are a homogenous group.

In fact, GRT is a term which encompasses many distinct ethnic groups with their own cultures, histories and traditions.

This includes Romany Gypsies, who today are generally of English or Welsh heritage.  Gypsies first arrived in Britain in the 16th Century. The term ‘Gypsy’ was coined due to a common misconception that Gypsies originated from Egypt. However, recent DNA studies suggest that they actually originated from the Indian subcontinent.  Some Gypsies may prefer to be known as either English Gypsies or Welsh Gypsies specifically.

Irish Travellers are Travellers with Irish roots, however, a recent DNA study suggests they have been genetically distinct from the settled Irish community for at least 1000 years. Irish Travellers have their own language – Shelta (also known as Cant).

Scottish Gypsies/Travellers are indigenous to Scotland.  Their exact origins are uncertain, but it is thought that they may be descended from the Picts, and/or the scattering of the clans following the Battle of Culloden in 1746.  Certainly, Scottish Travellers tend to share many of the same Clan surnames – including Stewart, McMillan, McPhee and McGregor.

Scottish Travellers also have their own language – the Gaelic-based Beurla Reagaird.

European Roma are descended from the same people as British Romany Gypsies, and they are Gypsies/Travellers who have moved to the UK from Central and Eastern Europe more recently.  Some have arrived as refugees and asylum seekers. While they face many of the same issues as Gypsies, Irish and Scottish Travellers, they are also subject to a number of additional challenges.

There are also other groups that are considered ‘cultural’ rather than ‘ethnic’ Travellers.  These include Occupational Travellers such as fairground and circus owners and workers and New Age Travellers – individuals who have chosen a travelling lifestyle for ideological reasons.

Distinct ethnic minorities protected by law

Whilst there are some similarities between GRT groups in terms of lifestyle, economic, family and community norms and values – and certainly in terms of the discrimination and poor outcomes that they experience – there are clear genetic differences between each of the groups.

As such, Gypsies, Irish Travellers and Scottish Travellers are each considered ethnic minorities in their own right and protected as “races” under the Equality Act 2010.  Migrant Roma are protected both by virtue of their ethnicities and their national identities.

However, despite this protection, GRT groups are still subject to high levels of discrimination.

‘The last acceptable form of racism’

Indeed, prejudice and discrimination has affected GRT groups throughout history.

In the 16th century, any person found to be a Gypsy could be subject to imprisonment, execution or banishment.  Even after anti-Gypsy laws were repealed, discrimination continued.  In the 19th and early 20th centuries, it was not uncommon for doctors to refuse to attend to Travellers.  And despite Travellers’ strong Christian beliefs, churches would often refuse to bury their bodies within their grounds.

And today, GRT people have the worst outcomes of any ethnic group across a huge range of areas, including education, health, employment and criminal justice.  They have the poorest health and the lowest life expectancy of any ethnic group in the UK, and are subject to high levels of racism and hate crime.

GRT groups still face barriers to accessing health services.  As part of a mystery shopper exercise by the Friends, Families and Travellers (FFT) charity, 50 GP practices were contacted by an individual posing as a patient wishing to register without a fixed address or proof of identity. They found that almost half would not register them, despite NHS guidance to the contrary.

And while racism towards most ethnic groups is now seen as unacceptable and less frequently expressed in public, racism towards GRT groups is still common and often overt – even among those who would otherwise consider themselves ‘liberal’ or ‘forward thinking’.  This had led it to be termed “the last acceptable form of racism”.

The 2015 Scottish Social Attitudes Survey found that over 30% of people in Scotland would be unhappy with a close relative marrying a Gypsy or Traveller, and 34% felt that Gypsies or Travellers were unsuitable as primary school teachers.

Research by Travellers Movement has found that four out of five (77%) of Gypsies, Roma and Travellers have experienced hate speech or a hate crime – ranging from regularly being subject to racist abuse in public to physical assaults.

Prejudice and discrimination against GRT groups is not limited to the public – there is also evidence of discrimination against GRT individuals by the media, police, teachers, employers and other public services.

Even politicians have openly displayed anti-GRT sentiment.  In 2017, the Conservative MP for Moray Douglas Ross, stated that he would impose “tougher enforcement against Gypsy Travellers” if he were Prime Minster for the day.

His remarks were widely criticised.  Amnesty International’s Scottish director, Naomi McAuliffe, said “When our elected leaders use this sort of blatantly partisan speech, they set a terrible example that only serves to foster further discrimination and prejudice.”.

A lack of sites has led to a ‘housing crisis’

Mr Ross’s remarks reflect another common misconception about GRT communities – that they all live in caravans, purposefully choosing to set up on unauthorised sites.

The truth is that while Gypsies and Travellers have traditionally lived a nomadic life, living in bow tents, wagons – and even caves – over 70% of Gypsies and Travellers no longer live in caravans, having chosen, or being forced for one reason or the other – disability, old age, lack of suitable sites – to move into traditional ‘bricks and mortar’ accommodation.

For those who do still live in caravans, it is widely recognised that they face a ‘housing crisis’ – an urgent shortage of authorised sites to set up on, which threatens their travelling heritage.  It is this shortage that drives much of the use of unauthorised sites.

Of those sites that do exist, quality has been raised as a key issue.  Many sites can lack even the most basic amenities, and some are sited near recycling plants or in other undesirable locations.  Poor conditions and sanitation contributes to poor levels of health, exacerbating existing health inequalities.

Further inequalities

In our next blog post, we will look in more depth at the inequalities that GRT communities face – in health, education and employment.  We also highlight work to address these inequalities and raise awareness of GRT communities’ rich cultural heritage.


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Engaging the ‘silent majority’ in planning: is digital the answer?

It has long been a concern that traditional planning consultation methods do not adequately capture the views of the majority.

Instead, they tend to be dominated by individuals with certain characteristics – typically older people or retirees, with high disposable income and social capital, and the time and means to attend in person.

This is partially because traditional planning consultation methods, such as public exhibitions, mainly involve individuals physically attending events at pre-specified places and times.

Younger people, students, people with disabilities, and working families with or without children, may find it difficult to attend and engage with such consultation methods.

In addition to this – people are also more likely to engage with the planning system when they are opposed to something.  Research by Shelter found that people opposed to local housebuilding were three times more likely to actively oppose an application than supporters were to actively support it (21% compared to 7%).

However, the majority of people surveyed were actually supportive or neutral regarding local house building.  This means that in many cases, there is a ‘silent majority’ – people whose voices are not being heard by the planning system.

This ‘silent majority’ often includes young people and others who may have the most to gain from new housing, employment and other benefits created by local developments.

In the rest of this blog, we consider the potential of social media and digital apps to make the planning system more accessible, inclusive and representative.

The potential of social media

Social media is everywhere – and as such it has a huge potential to reach and engage people from all walks of life.

Through adverts or posts in relevant groups, information about developments can be shared, with likes and comments providing feedback.  Short questionnaires or polls can also be administered to help gauge public opinion on a range of matters, such as locations, layouts and designs.

At present, social media is not a widely used planning consultation method – however, there is support for it to become so.

In 2016, a YouGov survey explored local councillors’ attitudes towards the use of social media during public consultation.  It found that:

  • 75% of councillors felt that social media was an important or very important engagement tool
  • 74% believed that social media would add value when reviewing planning applications
  • 60% felt that developers should be doing more to engage with local communities through social media
  • 60% believed social media will increase in importance as a public engagement tool over the next three years

It has been argued that social media is a much more relevant way to share information and consult on development proposals, particularly for young people.

It also has the potential to help overcome many of the time and accessibility barriers that prevent people from attending traditional ‘time and place’ consultation events.  And it has an incredible potential reach too – with Facebook having a total of 44 million active users and Twitter 14 million.

There are, however, some concerns – particularly regarding the verification of an individuals’ locality and the public management of negative comments, particularly as users can remain anonymous.  The potential for cyberactivism against a development and the spread of ‘fake news’ are also concerns.  Social media training would no doubt be required for those using social media to consult on developments.

Innovative apps

In addition to social media, digital apps offer an exciting new way for people to engage with the planning system.

Hailed as ‘Tinder’ for urban planning, CitySwipe is a new digital tool being used in Santa Monica’s downtown area to learn citizens’ preferences and concerns about the city’s urban core.  It enables local residents to swipe left or right to indicate their preferences regarding various different urban development scenarios.  For example, users may be asked to choose between different types of outdoor seating.  The app also covers attitudes towards things such as walking, bike lanes, housing and other such areas of interest to urban planners.

If CitySwipe is Tinder, then TrueViewVisuals can be likened to the Augmented Reality (AR) mobile gaming app ‘Pokémon Go’.  AG is a technology that superimposes a computer-generated image on a user’s view of the real world, thus providing a composite view of both.  TrueViewVisuals makes use of this to enable users to use their mobile device to view proposed developments in existing locations and is thus particularly useful in assessing their potential visual impact.

Bootlegger is a mobile app originally designed to film live music, which is now also being applied to the urban planning context.  It enables users to collaborate and share their footage with others, and edit them into a single video.   In Berwick-upon-Tweed, Bootlegger has been used to enable members of the public to make their own ­films regarding planning proposals and the neighbourhood area and share them with others.

ChangeExplorer uses location data to provide users with ‘push notifications’ when they enter a geographic location that is subject to redevelopment plans.  Users can then view and comment on the plans, making it much easier for local residents and visitors to have their say on planning decisions.  It has been used successfully by North Tyneside Council, where it was found to be “an effective tool in encouraging participants to think about what they would like to change and for them to feel empowered in raising relevant issues”.

Enhance and evolve

These are just a handful of the ways in which technology can be used to engage young people and others within the ‘silent majority’.  It is an area which is developing all of the time – as recent reports by the Scottish Government, Future City Catapult and the RTPI show.

It also comes at a time where there is wider discussion of the need to make planning more inclusive.  In order to do this, it is essential that the views captured by planning consultations truly represent the needs and preferences of all local residents.

Of course, online engagement cannot replace the need for traditional consultation approaches and techniques entirely.  Instead, they should complement one another, offering both an enhancement and an evolution of the current planning system.  And in doing so, the planning system can meet both the needs and expectations of an increasingly digital world.


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Gender pay gap at universities could get even worse – here’s why

File 20181204 34148 fah1wc.jpg?ixlib=rb 1.1

This guest blog was written by Nisreen Ameen, Lecturer at Queen Mary University London.

Britain has one of the largest gender pay gaps in the European Union, with women earning roughly 21% less than men. This means that women in UK universities today are still earning less than their male colleagues. So although laws on equal pay have been in place for more than 40 years, there is still a large gender pay gap in UK universities.

The difference in hourly pay between men and women is 15% in top UK universities and 37% in other universities. What’s more, men have most of the top jobs in UK universities, while women have more of the lower-paid jobs.

And this “gender pay gap” may keep getting wider if women aren’t supported to develop their digital skills. This is because women tend to have less advanced digital skills than men – skills that are increasingly in demand for university lecturer roles. And as universities around rely more extensively on digital technology, they need employees who have creative digital skills – which means women are more likely to miss out on jobs, promotions and pay increases.

Wanted: technical talent

The use of technology is now just part of the day job for anyone involved in teaching and learning in universities. Universities use technology to teach and communicate with students online – which can help to improve a student’s learning experience. Staff are also expected to use online learning and mobile learning platforms to teach, assess and talk to students in a virtual environment.

Universities also plan to use more advanced technology. Gamification is on the rise in universities. This is where universities personalise a student’s learning, using game design thinking in non-game applications. Wearable devices, such as an Apple Watch or Google Glass, can also encourage learners to get more involved in the subject. This type of technology will most likely be used more in universities over the coming years.

And as women in higher education are generally less likely to be skilled in using these technologies, they may well be left behind – widening the gender pay gap in higher education – while also making it harder for women to progress in their careers.

Digital skills divide

Our research which looks at the gender gap in smartphone adoption and use in Arab countries shows there is a wide gap in the way men and women use technology in some parts of the world. And we found similar patterns in the UK. Men have more advanced digital skills than women, and women are underrepresented in the technology sector, specifically in the digital sector in education.

This “digital divide” begins at a very early age in school. It continues into higher education – in the UK there is one of the highest gender gaps in technology-related courses among all university courses in the world.

Technology is advancing quickly, so academics and others working in higher education constantly have to update their skills. Without these skills, women in the sector are at a disadvantage when it comes to promotion and pay rises. So it’s more important than ever for universities to provide training and other programmes that help women develop their digital skills.

Closing the gender gap in digital skills would remove one factor contributing to the gender pay gap in UK universities. It would increase the chances of women being employed in the sector and make it easier for them to develop their careers. Tapping into female talent in technology would bring huge benefits to universities.

And above all, it would help to close the digital skills gap – while helping to build a more equal and fairer society.The Conversation


Nisreen Ameen, Lecturer in Information Technology Management, Queen Mary University of London

This article is republished from The Conversation under a Creative Commons license. Read the original article.

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Autism-friendly cities: making a world of difference

At this time of year, high streets and shops across the country are bustling, decked out with lights and colourful decorations, and of course, the familiar Christmas tunes.

For many, this is part and parcel of the exciting run up to Christmas.  However, for autistic people, the added crowds, lights and noise can turn an already challenging experience into a sensory nightmare.

Indeed, although more than 1 in 100 people in the UK are on the autism spectrum, many still struggle to access local shops and services.  Places that many neurotypical people may take for granted – shops, theatres, cinemas, cafes and restaurants, hairdressers, libraries and museums, public toilets, and public transport – can be particularly challenging environments for autistic people.

Unpredictable and unfamiliar noises, lights, smells, crowds, queues, and other events can be overwhelming, and may cause sensory distress – ultimately leading to a meltdown.  Meltdowns may present as crying, screaming, kicking, biting or lashing out.  A lack of understanding and awareness of autism among the public – including unfriendly looks, judgements and comments – can further enhance the distress experienced.

In 2015, a YouGov poll found that 99.5% of people in the UK had heard of autism. However, there remains a lack of public understanding about how it may present, and the associated challenges autistic people face.  This is perhaps best illustrated by the recent case of a young woman with Asperger’s being forcibly removed from a cinema for ‘laughing too loudly’.  Unfortunately, this experience is not unique.  Research has found that as many as 28% of people have been asked to leave a public space because of behaviour associated with autism.

Indeed, many autistic people and their families have changed their own behaviour to reduce the chance of experiencing intolerance from the public.

It’s perhaps not surprising, then, that social isolation is a common issue – 79% of autistic people and 70% of parents feel socially isolated.  Almost half (44%) sometimes don’t go out because they’re worried about how people will react.

Increasing public understanding

The recent Too Much Information (TMI) campaign, delivered by the National Autistic Society (NAS), aims to increase public understanding of the five core features of autism.

Those five core features are:

  • anxiety in social situations
  • anxiety with unexpected changes
  • sensory overload
  • meltdowns
  • processing time

Creating an autism friendly city

One response has been the drive towards the creation of ‘autism-friendly’ cities.

According to Autism Together and Autism Adventures, an autism-friendly city is one in which autistic people can ‘use public transport, shop for food and clothes, take part in sports and leisure activities, visit cultural and tourist institutions and eat in restaurants.’

The NAS have established an ‘Autism Friendly Award’, which aims to help businesses make the small changes that make the most difference to autistic people.  Their Autism Friendly Awards toolkit sets out a helpful five-point checklist:

  • customer information: providing appropriate information to help support autistic people and their families’ visitor or customer experience
  • staff understanding of autism: developing staff understanding
  • physical environment: making appropriate and reasonable adjustments within the limits of the physical environment
  • customer experience: a willingness to be flexible and providing a clear way for autistic people and their families to provide feedback
  • promoting understanding: committing to helping increase wider public understanding of autism

Examples of good practice

In Glasgow, the council have been working to make the city centre autism-friendly.  The plans have focused initially upon shopping centres, transport hubs, museums, cinemas and key operational staff across the city centre.

The Glasgow Film Theatre (GFT), Scotland’s oldest independent cinema, recently became the first cinema in the UK to achieve an Autism Friendly Award for their work with children and adults.  This includes monthly screenings for autistic adults and children, with the volume slightly lowered, stair lights remaining switched on, house lights dimmed and a chill out zone provided. Trained ‘autism facilitators’ also answer questions at the end of each film.

Other organisations have followed the GFT’s lead. Glasgow Science Centre, for example, has recently introduced autism friendly hours.

In the North East, Aberdeen has also announced its intention to work towards autism-friendly status.

As well as raising awareness and making key shopping locations more accessible for autistic people, Aberdeen also plans to introduce autism-friendly libraries, including pop up sensory sessions designed for autistic children.

Research has shown as many as 40% of people with autism never visit a library – however, 90% have said they would be more likely to visit their local library if some changes were made.

Such adjustments include staff training, increased tolerance of noise and understanding from the public.  Dimensions have released free online training and top tips for libraries looking to become autism-friendly. It notes that while many people with autism need a quiet environment, they may make noise themselves – for example, by talking to themselves or others, becoming excitable or moving around. They highlight the importance of making clear to the public that the library is autism-friendly, which includes a tolerance of certain levels of noise.

Other cities that have been working towards autism-friendly status include: Bristol –  whose airport has won an Autism Friendly Award; Liverpool – where autism champions are being supported to recognise and respond to autism; and Newcastle in Northern Ireland – which has been named as Northern Ireland’s first autism-friendly town. It is anticipated that being autism-friendly will help boost the local economy and tourism.

Other ways to make cities autism-friendly

As well as organisations themselves making adjustments and promoting autism understanding among staff and customers, there are a few other ways in which cities can be made more autism-friendly.

Making public transport more accessible is a key challenge.  More than half of autistic people avoid public transport due to fears of disruption.  There are many things that can be done to help make public transport less distressing for autistic people.

From an architecture and design perspective, there are also many other things that can help to make urban buildings and spaces more accessible, in regard to ventilation, acoustics, heating, lighting, layout and outdoor spaces.

From a town planning perspective – there is currently a lack of research and guidance on the design of places for autistic people per se, however, there may be some transferability of lessons from work on the creation of dementia-friendly and child-friendly spaces.

For example, the provision of clear signage and removal of street clutter may be beneficial for autistic people.  Edinburgh City Council has recently banned on-street advertising structures in order to make streets more accessible for people with disabilities.

There have also been concerns raised that shared spaces – including the removal of road signs, traffic crossings and delineation between roads/walkways – may negatively impact upon autistic people, who may struggle with the uncertainty such schemes deliberately create.  This is an area where more research and guidance is needed.

The way forward

Creating a city that is autism-friendly requires a multi-faceted approach that includes both raising public awareness and understanding, and creating towns and places that allow for the specific challenges that are faced by autistic people and their families.

Many steps that can be taken are low cost and easy to implement – and support is available from a range of national and local autism organisations, such as the NAS.

Even just reacting with kindness and compassion when witnessing a possible autistic meltdown – perhaps offering some solution such as a quiet space – is significant.  The sum of these small changes can make a world of difference to autistic people and their families.

I wouldn’t change my son for the world but I will change the world for my son.” Julie Simpson, Founder of Autism Adventures


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How to make people with learning disabilities feel more included in society

Image: Accessible music technology OpenUp Music/Youth Music Network

This guest blog was written by Val Williams, Professor of Disability Studies at the University of Bristol.

People with learning disabilities can often find themselves feeling excluded when it comes to making decisions about their lives. This can range from everything, from shopping to making music or even bringing up a baby. Sometimes this exclusion can be exacerbated by the kind of support that they receive from social services – but it can also be countered by sensitive personal assistance or support.

In a recent research project, which brought together disabled and non-disabled researchers, we looked at ways to improve this – and how to include people with learning disabilities in decisions.

Part of the project found that by taking active roles in the arts, people with learning disabilities can lead the way towards meaningful inclusion. Beth Richards, an actress with learning disabilities, led part of the research about people with learning disabilities on TV. She found that actors with learning disabilities are often limited to roles which depict the “disability”, the tragic or dependent life of the character, or their effect on others around them. A successful actor with learning disabilities, for instance, told her:

“I wish TV makers would think more creatively and give people with learning disabilities any role – romantic, fantasy, comedy, shop assistants, office workers. I’d like to play James Bond, Romeo, Dobby in Harry Potter or a detective or many other roles.”

The Queen’s Birthday Honours in June 2018 include an MBE to the actress with Downs Syndrome, Sarah Gordy, for her “services to the arts and people with disabilities”. As Gordy said upon receiving the award, “diversity is an opportunity, not a problem”. She is good proof of that.

But there is a lack of accessible information. There is no shortage of talented actors and drama companies supporting people with learning disabilities, but the TV industry and its workings are still shrouded in jargon. Processes such as commissioning, auditioning and scriptwriting tend to exclude those who do not have someone to help them navigate all this.

In another part of the research, my colleague Marina Gall looked in detail at how music making can be transformed by the Open Orchestras approach in which young people with multiple and complex needs are enabled to learn musical skills, play in ensembles and become music makers. A new technological instrument – the Clarion – can be played on computers and iPads, using one’s hand, a small sensor on any part of the body, or via a person’s gaze. It can be adapted to suit most students’ physical needs.

One of the co-founders of Open Orchestras, Doug Bott, told our research team, that the approach is “personalised around the individual young person”. But at the same time, it’s trying to ensure that music is an important part of the curriculum for all young people, and has been immensely successful in changing perceptions of people with learning disabilities. This is not therapy, it’s a route to making music and to performance.

Making decisions

People with learning disabilities also face inequalities and problems in the NHS, as well as in a cash-strapped social care system. For instance, since the Mental Capacity Act 2005 came into force, support staff are legally required to support people with learning disabilities to develop their own capacity to make a decision. What we saw in our data was that people with learning disabilities can be proactive in seeking out this support – and we recorded conversations with personal assistants where people wanted to talk about decisions relating to safety, health or simply about future cooking plans. The skills that a personal assistant needs to have are to listen, look out and be responsive to the people they are supporting.

One of the key messages from our project is that health and social care practices sometimes get stuck. We used the word “institutionalised” for those times when professionals stick to a rigid and inflexible way of doing things, leaving the disabled person without the power to have a voice.

These difficult moments were also highlighted by actors with learning disabilities who helped to interpret our data. Our research benefited from a collaboration with the Misfits Theatre Company in Bristol, showing how sensitive interactions between people with learning disabilities and their personal assistants were often the trigger for good decisions, and giving those with disabilities a feeling of control over their own lives.

But quite small comments can create problems, spoiling an empowering relationship. The theatre company made a brilliant video called A Good Match about their own perspectives and experience of managing relationships with a personal assistant. One of the Misfits actors said: “It’s my house … and I don’t want my (personal assistant) telling me what I can and cannot do.”

 

After looking at a range of activities that can exclude or include people with learning disabilities, we concluded that inclusion happens when three things come together. Sometimes people with learning disabilities are included because of changes to technology, as in the Open Orchestras approach. At other times, they are included better because of new ways of doing something, or through new skills that they may learn – as actors, or as TV performers.

The ConversationBut at the heart of all this is a new belief in the equal value of people with learning disabilities. This is why we recommend that social care services need to focus less on what people cannot do, but instead promote a genuine belief in what people with learning disabilities can do – with the right support.


Val Williams is Professor of Disability Studies at the University of Bristol.

This article was originally published on The Conversation website and has been republished with permission under a Creative Commons licence. Read the original article.

Universal basic income: too good to be true?

“I am now convinced that the simplest approach will prove to be the most effective – the solution to poverty is to abolish it directly by a now widely discussed measure: the guaranteed income.” Martin Luther King, 1967

It may come as a surprise to learn that the current ‘hot topic’ of universal basic income (UBI) – also known as basic income or income guarantee – is actually over 500 years old.

It was first developed by radicals such as philosopher Sir Thomas More in the 16th century, drawing upon humanist philosophy.  It was mooted by Thomas Paine in the 18th century, and then again in the mid-20th century, by economists such as James Tobin and Milton Friedman.  In 1967, Martin Luther King called for a ‘guaranteed income’ to abolish poverty, and in the 1970s, a basic income experiment ‘Mincome’ was conducted in Canada.

However, only in recent years has debate on universal basic income (UBI) moved into the mainstream.

From the threat of job losses from automation and artificial intelligence, an overly complex and bureaucratic welfare system that has been branded ‘unfit for purpose’, to the failure of conventional means to successfully tackle unemployment over the last decade – basic income has been hailed as a key way to reduce inequality and provide a basic level of financial security upon which individuals can build their lives.

It has many current supporters – including billionaires Elon Musk, Mark Zuckerberg, and Richard Branson.  There is support among the general public too, with a recent poll reporting that nearly half of all adults aged 18-75 in the UK (49%) would support the UK Government introducing UBI at the level to cover basic needs in principle.

 

How does it work? 

In essence, UBI offers every citizen a regular payment without means testing or requirement for work.

Trials of different models of basic income have been conducted around the globe, including Kenya, Finland, and Canada.  There are also UBI trials planned in the district of Besós in Barcelona, Utrecht in the Netherlands and the Finnish city of Helsinki.  Closer to home, four areas in Scotland are also currently designing basic income pilots – Glasgow, Edinburgh, Fife and North Ayrshire.

While there have been many different models of basic income trialled and assessed over the years, in general, basic income schemes share five key characteristics:

  • Periodic: it is paid at regular intervals, not as a one-off grant.
  • Cash payment: it is paid in an appropriate medium of exchange, allowing those who receive it to decide what they spend it on. It is not paid in kind (such as food or services) or in vouchers with a specific use
  • Individual: it is paid on an individual basis—and not, for instance, to households.
  • Universal: it is paid to all, without means test
  • Unconditional: it is paid without a requirement to work or to demonstrate willingness-to-work

 

Anticipated benefits

The key anticipated benefits of the introduction of UBI is a reduction in inequality and poverty. However, advocates claim that it would also have many other benefits.  These include:

  • simplifying the existing welfare system (including efficiency gains)
  • reducing the psychological burden and stigma associated with welfare benefits
  • achieving more comprehensive coverage – no one ‘slipping through the net’
  • fixing the threshold and ‘poverty trap’ effects induced by means-tested schemes
  • enabling individuals to continue education and training, or retrain, without financial constraint dictating choices
  • making childcare arrangements easier
  • rewarding unpaid contributions such as caring and volunteer work
  • improving gender equality and help women in abusive situations
  • improving working conditions
  • addressing predicted future mass unemployment as a result of automation

 

Criticism

The key argument against the introduction of UBI is its cost – essentially that “an affordable UBI would be inadequate, and an adequate UBI would be unaffordable”.

Critics argue that if UBI were set at a level that enabled a modest, but decent standard of living on its own, then it would be unaffordable – either requiring much higher taxes, and/or the redistribution of funds from other areas, such as education or health.

However, if UBI was set too low, it would not provide an adequate income to live on, and it may be exploited as a subsidy for low wages by unscrupulous employers.

Others, such as economist John Kay, have argued that UBI simply would not have the redistributive effects intended.  Rather than improving the lives of those most in need, who would receive more or less the same as they do under existing welfare systems, it would instead provide more for the middle classes.

There is also some concern that UBI may undermine the incentive to work, and lead to the large-scale withdrawal of women from the labour market.

 

What does the evidence say?

Certainly, there is a beauty in the simplicity of UBI – and no one can argue against the goals of reducing inequality and poverty.  However, in truth, there just isn’t enough evidence available yet to judge whether or not the full-scale introduction of UBI would be successful.

While many pilots have demonstrated positive results, most have been of limited size and scope, and it is difficult to extrapolate these findings to the wider population.

Analyses by a wide range of organisations – including the RSA, the Joseph Rowntree Foundation, the OECD, and the International Monetary Fund, have drawn mixed results.

For example, a review conducted by Bath University in 2017 concluded that:

The unavoidable reality is that such schemes either have unacceptable distributional consequences or they simply cost too much. The alternative – to retain the existing structure of means-tested benefits – ensures a more favourable compromise between the goals of meeting need and controlling cost, but does so at the cost of administrative complexity and adverse work incentive effects.”

Similarly, the IMF conclude that in the UK and France, UBI would be inferior to existing systems in targeting poverty and inequality. However, there are some aspects of UBI that are difficult to model, such as the behavioural impacts of having economic security.  Trials and experimentation are important sources of such information.

Thus, the planned trials of UBI in Scotland and elsewhere may well help to provide further answers.  And we – along with others around the world – will be watching with interest.

As First Minister, Nicola Sturgeon aptly puts it:

It might turn out not to be the answer, it might turn out not to be feasible. But as work and employment changes as rapidly as it is doing, I think it’s really important that we are prepared to be open-minded about the different ways that we can support individuals to participate fully in the new economy.”


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Research Online: an expert source of information on the Scottish labour market

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One of the Knowledge Exchange’s key aims is to support the use of evidence and research in public policy and practice. Our Information Service database has been recognised by the Alliance for Useful Evidence in its Evidence Ecosystem which illustrated the diversity of organisations involved in supporting evidence use in the government and public sector. But we also support two other sector-specific research portals – Research Online and Evaluations Online.

Here we introduce Research Online, which first launched over 14 years ago and which we have worked with Skills Development Scotland to develop and update ever since.

Scottish labour market intelligence

Research Online is Scotland’s labour market hub. The portal provides an authoritative source of labour market research and analysis relevant to Scotland and supports evidence-based policy making in the Scottish labour market.

Before Research Online was created, research suggested that although useful labour market research and analysis was undertaken within Scotland by a large range of organisations, there was no single dissemination source.

Therefore, a requirement existed for a portal that clearly identified current labour market intelligence (LMI), provided a common understanding of current gaps and provision in areas including labour supply and skills, and focused action to ensure LMI met Scottish user needs.

Research Online was conceived to improve access to this wealth of intelligence.

The most comprehensive collection of labour market intelligence

The portal now contains thousands of documents on a range of labour market topics including:

  • Employment;
  • Skills and training;
  • Unemployment;
  • Entrepreneurship;
  • Vocational education and training;
  • Workforce development; and
  • Equal opportunities.

The material available on the portal includes research, policy, analysis, discussion and sectoral and geographic profiles. Our team sources the latest research and policy documents from a wide range of sources, including academic journals, government departments and agencies, labour market research centres and material sent in directly by key organisations in Scotland and the wider UK. The available material includes grey literature, government policy and up-to-date academic research.

Research Online also incorporates a current awareness service that alerts registered users to new material on a fortnightly basis. It also has integrated reading list functionality.

Free to access

Research Online can be accessed by anyone, free of charge. You can browse the material here without registering, as well as create reading lists to be accessed at a later date or shared with colleagues.

If you would like to sign-up for a range of current awareness alerts that keep you up to date on a variety of labour market topics, covering both Scotland and the wider UK, you can do so here.

Our shared vision is for Research Online to be recognised as a key dissemination mechanism by Scotland’s producers of labour market intelligence and to be at the centre of a community of practice for labour market researchers, practitioners and policy-makers.


You can find out more about the projects The Knowledge Exchange team has been involved in, and the consultancy services we offer, here.

Breaking down barriers: helping disabled people enter and sustain employment

“We have a moral duty to remove the barriers to participation for people with disabilities, and to invest sufficient funding and expertise to unlock their vast potential.Professor Stephen Hawking (2011)

In the UK, the disability employment gap – the difference in the employment rate of disabled and non-disabled people – has remained largely static for over a decade.

Just 48% of disabled people are in employment, compared to 80% of non-disabled people.  Employment rates are even lower for people with certain disabilities, such as learning disabilities (6%), and for people with autism (32%).

There are a number of reasons for this.  These include the personal barriers that people with disabilities face when working, a lack of appropriate support to help them into and remain in work, negative attitudes from employers and recruitment agencies, inaccessible workplaces and inflexible working practices.

Perceived barriers and prejudice

Employers are often wary of hiring people with disabilities.  A recent poll found that as many as 22% of employers openly admitted that they would be less likely to hire a person with disabilities.  Many more may have felt similarly but were less willing to admit to it.

According to research by the Centre for Social Justice, 63% of employers feel that there are significant barriers to employing someone with a disability.  These include:

  • concerns about their ability to do the job
  • the costs of making reasonable adjustments
  • the inconvenience of making reasonable adjustments
  • fear of increased possibility of litigation
  • concerns about their ability to integrate into the team
  • concerns about a potentially negative customer reaction

Given these negative attitudes and perceptions, it is no wonder that as many as 1 in 5 (21%) disabled people hide their disability from employers, and over half (58%) feel that they are at risk of losing their jobs because of their impairments.

Benefits for employers

In truth, research has found that there is a “compelling case” for hiring disabled people – although few (9%) employers recognise this.

Becoming more disability-friendly can significantly increase an employer’s potential talent pool – around 1 in 5 working age adults in the UK have some kind of disability.

The majority (around 80%) of disabled people acquire their disability during the course of their working life.  There are clear benefits to retaining an experienced, skilled employee who has acquired an impairment – not least avoiding the costs and inconvenience involved in recruiting and training new staff.

Research has also found other benefits. These include:

  • higher rates of retention, lower absenteeism and good punctuality
  • improved employer loyalty and commitment
  • improving access to disabled customers
  • improving staff relations and personnel practices
  • improving the public image of the company as a fair and inclusive employer
  • bringing additional skills to the business, such as the ability to use British Sign Language (BSL)

Adjustments often low cost

Research has also found that employers frequently overestimate the costs of reasonable adjustments. Indeed, according to ACAS, only 4% of reasonable adjustments do cost, and even then the average is only £184 per disabled employee.

In any case, the government’s Access to Work scheme is specifically designed to cover the majority of the costs associated with making reasonable adjustments, including the provision of special aids and equipment, adaptations to equipment, travel to and from work, and support workers.

However, not enough employers know about the Access to Work scheme; only 25% are aware of it.

Free support and advice

According to Acas, there are many things that employers can do to become more ‘disability-friendly’.

These include helping people to gain employment, by tackling unconscious bias, adapting recruitment processes, creating an inclusive workplace culture, providing appropriate training and support for line managers, as well as addressing basic issues such as access to buildings (particularly older buildings where adaptations are more difficult/costly).

Once in work, it is important to maintain an open dialogue between managers and employees in order to develop an awareness of individual needs and potential adaptations.

Wellbeing initiatives, and clear and consistent attendance management/return to work policies, including ‘keep in touch’ days during any period of absence, can also help disabled people to avoid ‘falling out of work’.

Employers can obtain support on attracting, recruiting and retaining disabled people in the workplace through the government’s Disability Confident scheme. They can also make use of Fit for Work – a national occupational health service that is free at the point of delivery.

A better workplace for all

While not all disabled people should be expected to work, a significant majority would like to work more.

Closing the disability employment gap is important – not just for the individuals involved, but for businesses themselves and the wider economy.  Social Market Foundation research has found that halving the gap and supporting one million more disabled people into work would boost the economy by £13 billion.

There are some promising signs of progress.  Organisations as diverse as Barclays, Channel 4 and the Civil Service have all established innovative approaches to employee disability support and management.  Such initiatives not only help disabled employees directly, but also serve as a benchmark of what other employers can do to encourage and support disabled people within their organisation, and raise awareness of the benefits of employing disabled people for the organisation itself.

In many cases too, the improved working practices associated with becoming disability-friendly are of benefit not only to disabled employees, but to all employees, customers and service users too.


You may also be interested in our previous blog posts on supporting neurodiversity and mental health in the workplace.  

To see what other topics our researchers are interested in, follow us on Twitter.

Dementia and the right to vote

On 3rd May 2018 voters in England will go to the polls in local elections. These elections will decide the make-up of local and borough councils across the UK, as well as some additional direct elections for the Mayoralties of Hackney, Lewisham, Newham, Tower Hamlets and Watford.

As the population ages, questions arise over the ability and voting rights of those with age related degenerative mental conditions such as dementia and Alzheimer’s. Formal enquiries to council election teams, and general Google searches about the legal rights of someone with dementia to vote are increasing in number.

A dementia diagnosis does not alter a person’s right to vote. The Mental Capacity Act, which provides a framework for making decisions on behalf of people who lack capacity to make a decision, does not apply to voting. This means that a lack of mental capacity does not stop someone from being able to vote. It is up to the individual to decide if they want to vote. However, challenges can sometimes arise, if for example relatives vote for the individual, rather than on their behalf, voting for who they “think” the individual would have voted for, rather than who the individual themselves have expressed a wish to vote for.

This grey area can sometimes present challenges, especially as often this goes on in private. However, there are steps that can be taken to make voting as transparent as possible, and make the process of voting as accessible as possible for people with dementia (and other disabilities).

Image by secretlondon123, via Creative Commons

Physical adaptations

Physical adaptations can be made to the polling environment to make it more accessible for voters with dementia and Alzheimer’s. While there is a responsibility to make sure that polling stations are accessible to all, some adaptations can sometimes be overlooked, or are not made as obvious as they could be. Making polling stations “dementia friendly” can require just a few short adaptations, including perhaps a specific polling booth which uses labels like “in” and “out” and “pencil” in the booth itself.

Training for polling station staff on understanding how to react to and deal with voters who attend polling stations who have dementia is also seen as very important. In particular, there may be those who may need a carer to enter into the polling station with them. Poll station staff should be able to direct such voters in an appropriate way, regarding how to vote appropriately, especially if there are multiple elections happening on one day, with multiple ballot papers. Polling station staff should also be aware that they are able to help the voter to mark the paper (as the voter chooses) if for some reason they are unable to mark the page or hold the pencil themselves.

Removing additional barriers to voting such as reminding the individual to attend their polling station on the right day, or providing transport for those who are not mobile or do not know how to get to their polling station can also help make the process of voting in person, on the day a more pleasant experience for people suffering from dementia or Alzheimer’s.

Postal or proxy votes: voting remotely from home

Increasing awareness of postal and proxy voting is another way that people with dementia and Alzheimer’s could exercise their right to vote without causing distress or confusion (which can sometimes be instigated by physically attending a polling station).

Postal voting allows the individual to vote from home and submit their ballot (and accompanying postal vote statement) via post. Voting by post can help reduce the potential stresses of an unfamiliar environment like the polling station. A signature is usually required on a postal vote, for security reasons, but if a voter is unable to sign their name, or if their signature varies a lot, then they can ask for a waiver. (If you want to do this, contact your local registration officer and they will help you, usually by sending you a waiver request form.)

A proxy vote allows the voter to nominate another person to vote on their behalf. A proxy does not make the decision about who to vote for on behalf of the person, but rather votes for who they are instructed to vote for by the original voter.

Guidance from the electoral commission has also been issued for Electoral Registration Officers (EROs), with regard to assisted applications to vote, and what can and can’t be done on behalf of a voter. This includes the presumption that a person has capacity. In addition, residents of care homes can be registered to vote by care home managers, who can complete an application for all residents, but again, cannot vote on their behalf (unless they are a registered proxy for the voter).

Graphic design image: three padlocks in front of a futuristic city.

Challenges and opportunities in the future

Additional challenges could be presented by the development of electronic voting. However, this could also be seen as an opportunity to create a voting system which is actually more straight forward and is easier to navigate for people with multiple disabilities, including dementia.

Estonia has one of the best developed e-voting systems in the world, with voting linked to a national digital ID card which contains photos and digital copies of fingerprints for additional security. The system can make the process of voting clearer, and also make it easier for people with a limited range of movement to vote themselves. However, there are a number of questions which have been raised as to whether this would be a feasible option in Britain.

Some have suggested it would not actually make voting any easier, that it would require a major overhaul of voting systems and the transfer of a lot of data and information, and that, given the recent uncertainty around cyber-attacks, there can be little certainty, with current software, that the process could be completely reliable and secure.

Final thoughts

Many people with dementia still hold strong political feelings, and know their own opinion when it comes to voting for political parties or in a referendum. However, the process of voting can often present them with specific challenges. It is up to local authority teams and their election partners to make the process as transparent and easy for people with dementia and Alzheimer’s as possible. Specific challenges include not spoiling the ballot, and the ability to write/ see the ballot paper and process the information quickly enough.

In 2017 the government launched a Call for Evidence asking for views on how people with disabilities experience registering to vote and voting itself. This included people with dementia and Alzheimer’s, although the results of this are as yet unpublished.

It is clear that, exercising your right to vote is something that should be protected for all citizens, but with the growing challenges raised by an ageing population, the time may be coming for the UK to have a major rethink about how it votes, and what changes could be made to make this easier for people with conditions such as Alzheimer’s and dementia.


Find out more about Idox Elections.

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