How to make people with learning disabilities feel more included in society

Image: Accessible music technology OpenUp Music/Youth Music Network

This guest blog was written by Val Williams, Professor of Disability Studies at the University of Bristol.

People with learning disabilities can often find themselves feeling excluded when it comes to making decisions about their lives. This can range from everything, from shopping to making music or even bringing up a baby. Sometimes this exclusion can be exacerbated by the kind of support that they receive from social services – but it can also be countered by sensitive personal assistance or support.

In a recent research project, which brought together disabled and non-disabled researchers, we looked at ways to improve this – and how to include people with learning disabilities in decisions.

Part of the project found that by taking active roles in the arts, people with learning disabilities can lead the way towards meaningful inclusion. Beth Richards, an actress with learning disabilities, led part of the research about people with learning disabilities on TV. She found that actors with learning disabilities are often limited to roles which depict the “disability”, the tragic or dependent life of the character, or their effect on others around them. A successful actor with learning disabilities, for instance, told her:

“I wish TV makers would think more creatively and give people with learning disabilities any role – romantic, fantasy, comedy, shop assistants, office workers. I’d like to play James Bond, Romeo, Dobby in Harry Potter or a detective or many other roles.”

The Queen’s Birthday Honours in June 2018 include an MBE to the actress with Downs Syndrome, Sarah Gordy, for her “services to the arts and people with disabilities”. As Gordy said upon receiving the award, “diversity is an opportunity, not a problem”. She is good proof of that.

But there is a lack of accessible information. There is no shortage of talented actors and drama companies supporting people with learning disabilities, but the TV industry and its workings are still shrouded in jargon. Processes such as commissioning, auditioning and scriptwriting tend to exclude those who do not have someone to help them navigate all this.

In another part of the research, my colleague Marina Gall looked in detail at how music making can be transformed by the Open Orchestras approach in which young people with multiple and complex needs are enabled to learn musical skills, play in ensembles and become music makers. A new technological instrument – the Clarion – can be played on computers and iPads, using one’s hand, a small sensor on any part of the body, or via a person’s gaze. It can be adapted to suit most students’ physical needs.

One of the co-founders of Open Orchestras, Doug Bott, told our research team, that the approach is “personalised around the individual young person”. But at the same time, it’s trying to ensure that music is an important part of the curriculum for all young people, and has been immensely successful in changing perceptions of people with learning disabilities. This is not therapy, it’s a route to making music and to performance.

Making decisions

People with learning disabilities also face inequalities and problems in the NHS, as well as in a cash-strapped social care system. For instance, since the Mental Capacity Act 2005 came into force, support staff are legally required to support people with learning disabilities to develop their own capacity to make a decision. What we saw in our data was that people with learning disabilities can be proactive in seeking out this support – and we recorded conversations with personal assistants where people wanted to talk about decisions relating to safety, health or simply about future cooking plans. The skills that a personal assistant needs to have are to listen, look out and be responsive to the people they are supporting.

One of the key messages from our project is that health and social care practices sometimes get stuck. We used the word “institutionalised” for those times when professionals stick to a rigid and inflexible way of doing things, leaving the disabled person without the power to have a voice.

These difficult moments were also highlighted by actors with learning disabilities who helped to interpret our data. Our research benefited from a collaboration with the Misfits Theatre Company in Bristol, showing how sensitive interactions between people with learning disabilities and their personal assistants were often the trigger for good decisions, and giving those with disabilities a feeling of control over their own lives.

But quite small comments can create problems, spoiling an empowering relationship. The theatre company made a brilliant video called A Good Match about their own perspectives and experience of managing relationships with a personal assistant. One of the Misfits actors said: “It’s my house … and I don’t want my (personal assistant) telling me what I can and cannot do.”

 

After looking at a range of activities that can exclude or include people with learning disabilities, we concluded that inclusion happens when three things come together. Sometimes people with learning disabilities are included because of changes to technology, as in the Open Orchestras approach. At other times, they are included better because of new ways of doing something, or through new skills that they may learn – as actors, or as TV performers.

The ConversationBut at the heart of all this is a new belief in the equal value of people with learning disabilities. This is why we recommend that social care services need to focus less on what people cannot do, but instead promote a genuine belief in what people with learning disabilities can do – with the right support.


Val Williams is Professor of Disability Studies at the University of Bristol.

This article was originally published on The Conversation website and has been republished with permission under a Creative Commons licence. Read the original article.

Universal basic income: too good to be true?

“I am now convinced that the simplest approach will prove to be the most effective – the solution to poverty is to abolish it directly by a now widely discussed measure: the guaranteed income.” Martin Luther King, 1967

It may come as a surprise to learn that the current ‘hot topic’ of universal basic income (UBI) – also known as basic income or income guarantee – is actually over 500 years old.

It was first developed by radicals such as philosopher Sir Thomas More in the 16th century, drawing upon humanist philosophy.  It was mooted by Thomas Paine in the 18th century, and then again in the mid-20th century, by economists such as James Tobin and Milton Friedman.  In 1967, Martin Luther King called for a ‘guaranteed income’ to abolish poverty, and in the 1970s, a basic income experiment ‘Mincome’ was conducted in Canada.

However, only in recent years has debate on universal basic income (UBI) moved into the mainstream.

From the threat of job losses from automation and artificial intelligence, an overly complex and bureaucratic welfare system that has been branded ‘unfit for purpose’, to the failure of conventional means to successfully tackle unemployment over the last decade – basic income has been hailed as a key way to reduce inequality and provide a basic level of financial security upon which individuals can build their lives.

It has many current supporters – including billionaires Elon Musk, Mark Zuckerberg, and Richard Branson.  There is support among the general public too, with a recent poll reporting that nearly half of all adults aged 18-75 in the UK (49%) would support the UK Government introducing UBI at the level to cover basic needs in principle.

 

How does it work? 

In essence, UBI offers every citizen a regular payment without means testing or requirement for work.

Trials of different models of basic income have been conducted around the globe, including Kenya, Finland, and Canada.  There are also UBI trials planned in the district of Besós in Barcelona, Utrecht in the Netherlands and the Finnish city of Helsinki.  Closer to home, four areas in Scotland are also currently designing basic income pilots – Glasgow, Edinburgh, Fife and North Ayrshire.

While there have been many different models of basic income trialled and assessed over the years, in general, basic income schemes share five key characteristics:

  • Periodic: it is paid at regular intervals, not as a one-off grant.
  • Cash payment: it is paid in an appropriate medium of exchange, allowing those who receive it to decide what they spend it on. It is not paid in kind (such as food or services) or in vouchers with a specific use
  • Individual: it is paid on an individual basis—and not, for instance, to households.
  • Universal: it is paid to all, without means test
  • Unconditional: it is paid without a requirement to work or to demonstrate willingness-to-work

 

Anticipated benefits

The key anticipated benefits of the introduction of UBI is a reduction in inequality and poverty. However, advocates claim that it would also have many other benefits.  These include:

  • simplifying the existing welfare system (including efficiency gains)
  • reducing the psychological burden and stigma associated with welfare benefits
  • achieving more comprehensive coverage – no one ‘slipping through the net’
  • fixing the threshold and ‘poverty trap’ effects induced by means-tested schemes
  • enabling individuals to continue education and training, or retrain, without financial constraint dictating choices
  • making childcare arrangements easier
  • rewarding unpaid contributions such as caring and volunteer work
  • improving gender equality and help women in abusive situations
  • improving working conditions
  • addressing predicted future mass unemployment as a result of automation

 

Criticism

The key argument against the introduction of UBI is its cost – essentially that “an affordable UBI would be inadequate, and an adequate UBI would be unaffordable”.

Critics argue that if UBI were set at a level that enabled a modest, but decent standard of living on its own, then it would be unaffordable – either requiring much higher taxes, and/or the redistribution of funds from other areas, such as education or health.

However, if UBI was set too low, it would not provide an adequate income to live on, and it may be exploited as a subsidy for low wages by unscrupulous employers.

Others, such as economist John Kay, have argued that UBI simply would not have the redistributive effects intended.  Rather than improving the lives of those most in need, who would receive more or less the same as they do under existing welfare systems, it would instead provide more for the middle classes.

There is also some concern that UBI may undermine the incentive to work, and lead to the large-scale withdrawal of women from the labour market.

 

What does the evidence say?

Certainly, there is a beauty in the simplicity of UBI – and no one can argue against the goals of reducing inequality and poverty.  However, in truth, there just isn’t enough evidence available yet to judge whether or not the full-scale introduction of UBI would be successful.

While many pilots have demonstrated positive results, most have been of limited size and scope, and it is difficult to extrapolate these findings to the wider population.

Analyses by a wide range of organisations – including the RSA, the Joseph Rowntree Foundation, the OECD, and the International Monetary Fund, have drawn mixed results.

For example, a review conducted by Bath University in 2017 concluded that:

The unavoidable reality is that such schemes either have unacceptable distributional consequences or they simply cost too much. The alternative – to retain the existing structure of means-tested benefits – ensures a more favourable compromise between the goals of meeting need and controlling cost, but does so at the cost of administrative complexity and adverse work incentive effects.”

Similarly, the IMF conclude that in the UK and France, UBI would be inferior to existing systems in targeting poverty and inequality. However, there are some aspects of UBI that are difficult to model, such as the behavioural impacts of having economic security.  Trials and experimentation are important sources of such information.

Thus, the planned trials of UBI in Scotland and elsewhere may well help to provide further answers.  And we – along with others around the world – will be watching with interest.

As First Minister, Nicola Sturgeon aptly puts it:

It might turn out not to be the answer, it might turn out not to be feasible. But as work and employment changes as rapidly as it is doing, I think it’s really important that we are prepared to be open-minded about the different ways that we can support individuals to participate fully in the new economy.”


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Research Online: an expert source of information on the Scottish labour market

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One of the Knowledge Exchange’s key aims is to support the use of evidence and research in public policy and practice. Our Information Service database has been recognised by the Alliance for Useful Evidence in its Evidence Ecosystem which illustrated the diversity of organisations involved in supporting evidence use in the government and public sector. But we also support two other sector-specific research portals – Research Online and Evaluations Online.

Here we introduce Research Online, which first launched over 14 years ago and which we have worked with Skills Development Scotland to develop and update ever since.

Scottish labour market intelligence

Research Online is Scotland’s labour market hub. The portal provides an authoritative source of labour market research and analysis relevant to Scotland and supports evidence-based policy making in the Scottish labour market.

Before Research Online was created, research suggested that although useful labour market research and analysis was undertaken within Scotland by a large range of organisations, there was no single dissemination source.

Therefore, a requirement existed for a portal that clearly identified current labour market intelligence (LMI), provided a common understanding of current gaps and provision in areas including labour supply and skills, and focused action to ensure LMI met Scottish user needs.

Research Online was conceived to improve access to this wealth of intelligence.

The most comprehensive collection of labour market intelligence

The portal now contains thousands of documents on a range of labour market topics including:

  • Employment;
  • Skills and training;
  • Unemployment;
  • Entrepreneurship;
  • Vocational education and training;
  • Workforce development; and
  • Equal opportunities.

The material available on the portal includes research, policy, analysis, discussion and sectoral and geographic profiles. Our team sources the latest research and policy documents from a wide range of sources, including academic journals, government departments and agencies, labour market research centres and material sent in directly by key organisations in Scotland and the wider UK. The available material includes grey literature, government policy and up-to-date academic research.

Research Online also incorporates a current awareness service that alerts registered users to new material on a fortnightly basis. It also has integrated reading list functionality.

Free to access

Research Online can be accessed by anyone, free of charge. You can browse the material here without registering, as well as create reading lists to be accessed at a later date or shared with colleagues.

If you would like to sign-up for a range of current awareness alerts that keep you up to date on a variety of labour market topics, covering both Scotland and the wider UK, you can do so here.

Our shared vision is for Research Online to be recognised as a key dissemination mechanism by Scotland’s producers of labour market intelligence and to be at the centre of a community of practice for labour market researchers, practitioners and policy-makers.


You can find out more about the projects The Knowledge Exchange team has been involved in, and the consultancy services we offer, here.

Breaking down barriers: helping disabled people enter and sustain employment

“We have a moral duty to remove the barriers to participation for people with disabilities, and to invest sufficient funding and expertise to unlock their vast potential.Professor Stephen Hawking (2011)

In the UK, the disability employment gap – the difference in the employment rate of disabled and non-disabled people – has remained largely static for over a decade.

Just 48% of disabled people are in employment, compared to 80% of non-disabled people.  Employment rates are even lower for people with certain disabilities, such as learning disabilities (6%), and for people with autism (32%).

There are a number of reasons for this.  These include the personal barriers that people with disabilities face when working, a lack of appropriate support to help them into and remain in work, negative attitudes from employers and recruitment agencies, inaccessible workplaces and inflexible working practices.

Perceived barriers and prejudice

Employers are often wary of hiring people with disabilities.  A recent poll found that as many as 22% of employers openly admitted that they would be less likely to hire a person with disabilities.  Many more may have felt similarly but were less willing to admit to it.

According to research by the Centre for Social Justice, 63% of employers feel that there are significant barriers to employing someone with a disability.  These include:

  • concerns about their ability to do the job
  • the costs of making reasonable adjustments
  • the inconvenience of making reasonable adjustments
  • fear of increased possibility of litigation
  • concerns about their ability to integrate into the team
  • concerns about a potentially negative customer reaction

Given these negative attitudes and perceptions, it is no wonder that as many as 1 in 5 (21%) disabled people hide their disability from employers, and over half (58%) feel that they are at risk of losing their jobs because of their impairments.

Benefits for employers

In truth, research has found that there is a “compelling case” for hiring disabled people – although few (9%) employers recognise this.

Becoming more disability-friendly can significantly increase an employer’s potential talent pool – around 1 in 5 working age adults in the UK have some kind of disability.

The majority (around 80%) of disabled people acquire their disability during the course of their working life.  There are clear benefits to retaining an experienced, skilled employee who has acquired an impairment – not least avoiding the costs and inconvenience involved in recruiting and training new staff.

Research has also found other benefits. These include:

  • higher rates of retention, lower absenteeism and good punctuality
  • improved employer loyalty and commitment
  • improving access to disabled customers
  • improving staff relations and personnel practices
  • improving the public image of the company as a fair and inclusive employer
  • bringing additional skills to the business, such as the ability to use British Sign Language (BSL)

Adjustments often low cost

Research has also found that employers frequently overestimate the costs of reasonable adjustments. Indeed, according to ACAS, only 4% of reasonable adjustments do cost, and even then the average is only £184 per disabled employee.

In any case, the government’s Access to Work scheme is specifically designed to cover the majority of the costs associated with making reasonable adjustments, including the provision of special aids and equipment, adaptations to equipment, travel to and from work, and support workers.

However, not enough employers know about the Access to Work scheme; only 25% are aware of it.

Free support and advice

According to Acas, there are many things that employers can do to become more ‘disability-friendly’.

These include helping people to gain employment, by tackling unconscious bias, adapting recruitment processes, creating an inclusive workplace culture, providing appropriate training and support for line managers, as well as addressing basic issues such as access to buildings (particularly older buildings where adaptations are more difficult/costly).

Once in work, it is important to maintain an open dialogue between managers and employees in order to develop an awareness of individual needs and potential adaptations.

Wellbeing initiatives, and clear and consistent attendance management/return to work policies, including ‘keep in touch’ days during any period of absence, can also help disabled people to avoid ‘falling out of work’.

Employers can obtain support on attracting, recruiting and retaining disabled people in the workplace through the government’s Disability Confident scheme. They can also make use of Fit for Work – a national occupational health service that is free at the point of delivery.

A better workplace for all

While not all disabled people should be expected to work, a significant majority would like to work more.

Closing the disability employment gap is important – not just for the individuals involved, but for businesses themselves and the wider economy.  Social Market Foundation research has found that halving the gap and supporting one million more disabled people into work would boost the economy by £13 billion.

There are some promising signs of progress.  Organisations as diverse as Barclays, Channel 4 and the Civil Service have all established innovative approaches to employee disability support and management.  Such initiatives not only help disabled employees directly, but also serve as a benchmark of what other employers can do to encourage and support disabled people within their organisation, and raise awareness of the benefits of employing disabled people for the organisation itself.

In many cases too, the improved working practices associated with becoming disability-friendly are of benefit not only to disabled employees, but to all employees, customers and service users too.


You may also be interested in our previous blog posts on supporting neurodiversity and mental health in the workplace.  

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Dementia and the right to vote

On 3rd May 2018 voters in England will go to the polls in local elections. These elections will decide the make-up of local and borough councils across the UK, as well as some additional direct elections for the Mayoralties of Hackney, Lewisham, Newham, Tower Hamlets and Watford.

As the population ages, questions arise over the ability and voting rights of those with age related degenerative mental conditions such as dementia and Alzheimer’s. Formal enquiries to council election teams, and general Google searches about the legal rights of someone with dementia to vote are increasing in number.

A dementia diagnosis does not alter a person’s right to vote. The Mental Capacity Act, which provides a framework for making decisions on behalf of people who lack capacity to make a decision, does not apply to voting. This means that a lack of mental capacity does not stop someone from being able to vote. It is up to the individual to decide if they want to vote. However, challenges can sometimes arise, if for example relatives vote for the individual, rather than on their behalf, voting for who they “think” the individual would have voted for, rather than who the individual themselves have expressed a wish to vote for.

This grey area can sometimes present challenges, especially as often this goes on in private. However, there are steps that can be taken to make voting as transparent as possible, and make the process of voting as accessible as possible for people with dementia (and other disabilities).

Image by secretlondon123, via Creative Commons

Physical adaptations

Physical adaptations can be made to the polling environment to make it more accessible for voters with dementia and Alzheimer’s. While there is a responsibility to make sure that polling stations are accessible to all, some adaptations can sometimes be overlooked, or are not made as obvious as they could be. Making polling stations “dementia friendly” can require just a few short adaptations, including perhaps a specific polling booth which uses labels like “in” and “out” and “pencil” in the booth itself.

Training for polling station staff on understanding how to react to and deal with voters who attend polling stations who have dementia is also seen as very important. In particular, there may be those who may need a carer to enter into the polling station with them. Poll station staff should be able to direct such voters in an appropriate way, regarding how to vote appropriately, especially if there are multiple elections happening on one day, with multiple ballot papers. Polling station staff should also be aware that they are able to help the voter to mark the paper (as the voter chooses) if for some reason they are unable to mark the page or hold the pencil themselves.

Removing additional barriers to voting such as reminding the individual to attend their polling station on the right day, or providing transport for those who are not mobile or do not know how to get to their polling station can also help make the process of voting in person, on the day a more pleasant experience for people suffering from dementia or Alzheimer’s.

Postal or proxy votes: voting remotely from home

Increasing awareness of postal and proxy voting is another way that people with dementia and Alzheimer’s could exercise their right to vote without causing distress or confusion (which can sometimes be instigated by physically attending a polling station).

Postal voting allows the individual to vote from home and submit their ballot (and accompanying postal vote statement) via post. Voting by post can help reduce the potential stresses of an unfamiliar environment like the polling station. A signature is usually required on a postal vote, for security reasons, but if a voter is unable to sign their name, or if their signature varies a lot, then they can ask for a waiver. (If you want to do this, contact your local registration officer and they will help you, usually by sending you a waiver request form.)

A proxy vote allows the voter to nominate another person to vote on their behalf. A proxy does not make the decision about who to vote for on behalf of the person, but rather votes for who they are instructed to vote for by the original voter.

Guidance from the electoral commission has also been issued for Electoral Registration Officers (EROs), with regard to assisted applications to vote, and what can and can’t be done on behalf of a voter. This includes the presumption that a person has capacity. In addition, residents of care homes can be registered to vote by care home managers, who can complete an application for all residents, but again, cannot vote on their behalf (unless they are a registered proxy for the voter).

Graphic design image: three padlocks in front of a futuristic city.

Challenges and opportunities in the future

Additional challenges could be presented by the development of electronic voting. However, this could also be seen as an opportunity to create a voting system which is actually more straight forward and is easier to navigate for people with multiple disabilities, including dementia.

Estonia has one of the best developed e-voting systems in the world, with voting linked to a national digital ID card which contains photos and digital copies of fingerprints for additional security. The system can make the process of voting clearer, and also make it easier for people with a limited range of movement to vote themselves. However, there are a number of questions which have been raised as to whether this would be a feasible option in Britain.

Some have suggested it would not actually make voting any easier, that it would require a major overhaul of voting systems and the transfer of a lot of data and information, and that, given the recent uncertainty around cyber-attacks, there can be little certainty, with current software, that the process could be completely reliable and secure.

Final thoughts

Many people with dementia still hold strong political feelings, and know their own opinion when it comes to voting for political parties or in a referendum. However, the process of voting can often present them with specific challenges. It is up to local authority teams and their election partners to make the process as transparent and easy for people with dementia and Alzheimer’s as possible. Specific challenges include not spoiling the ballot, and the ability to write/ see the ballot paper and process the information quickly enough.

In 2017 the government launched a Call for Evidence asking for views on how people with disabilities experience registering to vote and voting itself. This included people with dementia and Alzheimer’s, although the results of this are as yet unpublished.

It is clear that, exercising your right to vote is something that should be protected for all citizens, but with the growing challenges raised by an ageing population, the time may be coming for the UK to have a major rethink about how it votes, and what changes could be made to make this easier for people with conditions such as Alzheimer’s and dementia.


Find out more about Idox Elections.

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The challenge of engaging with marginalised Traveller, Gypsy and Roma communities

In March 2018, a Northern Ireland Human Rights Commission report found 13 systematic concerns about Traveller accommodation, suggesting that Traveller communities are subject to an “out of sight, out of mind” mentality from local authorities and service providers. You do not have to look far to find more research, from across the whole of the UK, which highlights similar challenges for, and attitudes towards Traveller communities. Attainment, school attendance, unemployment and community cohesion are all shown in research as being consistently lower among Traveller communities.

Research from IRISS shows that Traveller communities are subject to regular racial, social and cultural discrimination and feel isolated within a society that they feel does not respect them in the same way as other minority groups. Some even feel that it is more acceptable to make a derogatory comment about a Traveller than someone who is from another ethnic group.

Commentators repeatedly highlight that there is very little knowledge or understanding of nomadic lifestyles, and that this can contribute to the racism, abuse and stigmatisation of Traveller people. However, some projects are trying to address the view of Traveller communities and improve their treatment and engagement with other members of non-Traveller communities.

An erosion of traditional lifestyles and cultures

A lack of flexibility around housing arrangements means that, to a large extent, Traveller families are often forced to choose between either poor accommodation sites which allow them to maintain their traditional way of living, or giving up this traditional lifestyle (which is not just a way of living, but also an entrenched part of their heritage and culture) to live in mainstream traditional social housing. One major criticism of local authority and central government supported services is that they are very inflexible to nomadic living; health, education, housing and employment support are all usually reliant on a fixed address. As a result, third sector organisations, charities and specific engagement bodies usually end up taking the bulk of the pressure and responsibility for supporting Traveller families, or Travellers are left to fend for themselves. This can lead to them becoming isolated or reluctant to engage.

Those who make attempts to assimilate often do so at the cost of their traditional way of life, with some even commenting that there is a level of cultural erosion and almost cleansing, and that Travellers are being forced to choose between suitable accommodation and living standards, and their heritage and traditions.

Challenges span generations, and create entrenched barriers

Many Traveller families have poor education and health experiences and there are multiple barriers to Traveller families accessing these services. In schools, it has been well documented that Traveller children have lower levels of attendance and attainment, with higher levels of exclusion and a higher incidence of bullying, discrimination and racist abuse while at school.

In social work, Traveller children are more likely to be engaged with a social worker and taken into care. It is clear that professionals working within these environments need to be trained to react and respond to the needs of Traveller children in a culturally sensitive way.

Practitioners need to be sensitive, aware and flexible where possible to accommodate needs, but this is not always the case and it can make Traveller communities reluctant to engage directly with local authorities on issues. However, there is a growing body of research which looks at art and culture-centred practice to try and engage Traveller communities with their wider community, and to enlighten other members of the community in a positive way about Traveller culture.

Could art be the bridge to build understanding between communities?

Many Traveller communities do not readily have access to art and do not participate in “cultural activities” like attending the theatre or museums or using libraries. They also don’t have any relationship to most art produced. There is very little Traveller representation in art, music, theatre or museum exhibitions and it can be the case that Travellers feel art and culture in the mainstream is not representative of them or their culture, which can also hinder them from engaging.

However, using art and art-based interventions can help to break down entrenched stereotypes and can create a level playing field for people to participate and contribute, particularly among children who may not be as effective at communicating using words or language.

Engaging young children (and their families) through play and cultural activities can help break down some of the barriers and mistrust that communities feel towards one another. Community engagement initiatives enhance trust and can improve relations, but this must be done in a sensitive and inclusive manner. Traditional crafts and arts are something that can be shared across the whole community, not just within Traveller communities.

Non-Traveller children also are at a cultural disadvantage from not having Traveller communities portrayed in mainstream cultural activities. Greater representation in art, TV and books would help integration, help to break barriers, reduce stereotypes, increase understanding of a unique culture in Britain and (it is hoped) lead to greater integration and less hate crime.

Art also has the potential to be used as a tool to engage adults within the community. Using art as part of consultation exercises can make the process accessible and can allow people to be involved who may not usually contribute, helping them to feel they have had a say in decisions made within their community. Art can also be a useful strategy in community cohesion and neighbourhood building activities, with people able to express their opinions and fears through other mediums such as painting, drawing or acting – although establishing the initial engagement can be challenging.

Final thoughts

Art-based practice can be an accessible way to engage and create a dialogue between communities, and help to build a level of trust between Traveller communities and local services. However the activities must be culturally sensitive, and staff within local services must be willing to be flexible and creative with how they engage if they are to create meaningful relationships with Traveller communities.


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A different perspective: supporting neurodiversity in the workplace

“We need to admit that there is no standard brain” Dr Thomas Armstrong

It is estimated that over 1 in 100 people in the UK are on the autistic spectrum and awareness of the concept of ‘neurodiversity’ is rising. It recognises that autism, and other conditions that affect how people learn and process information – such as attention deficit disorders, dyslexia, dyspraxia, or dyscalculia – are a form of neurological difference, rather than being assumed to be a disability.

However, there remains a significant employment gap – where people on the autistic spectrum are often willing and able to work, but struggle to find and maintain employment.

Employment rates for adults with autism are considerably lower than for other groups. For example, only 32% of adults with autism in the UK are in some kind of paid employment. This compares with about 80% for non-disabled people and 47% for disabled people as a whole.

There are also many people on the autistic spectrum who work, but are struggling to maintain employment or to progress their careers due to discrimination, lack of understanding and lack of effective support.

Barriers to employment

Many autistic people are simply brilliant people – highly educated, highly capable, detail-oriented, yet unemployed” James Mahoney, Executive Director and Head of Autism at Work for JPMorgan Chase.

A lack of awareness and understanding means that some employers are fearful of the behaviour traits of people with autism, and the effect of these on their business, resources and other employees. Hiring processes, management practices and workspaces also tend to unconsciously favour ‘neurotypical’ employees.

Research has shown that standard recruitment processes are a key barrier to employment for people on the autistic spectrum.  Processes such as writing a CV, completing an application form, attending an interview, or doing a work-place assessment all rely heavily on social and communication skills. It may be difficult for people on the autistic spectrum to respond to open questions, or to abstract, hypothetical situations. They may be prone to conversational tangents, be overly honest about their weaknesses, or have difficulties in understanding body language and maintaining appropriate eye contact.

‘Good communication skills’ and ‘ability to work as part of a team’ are commonly listed as essential criteria in job descriptions – even though in practice, these skills may not be essential to the role. Thus, those on the autistic spectrum may find themselves ‘screened out’ of selection processes.

The workplace itself can also be challenging for people on the autistic spectrum. Office etiquette, social interaction and the sensory environment (such as sounds, lights, smells, interruptions) may present difficulties. People on the autistic spectrum may also suffer from anxiety or low self-esteem, which can impact upon their working lives.

Thinking differently

“Asperger’s syndrome provides a plus – it makes people more creative. People with it are generally hyper-focused, very persistent workaholics who tend to see things from detail to global rather than looking at the bigger picture first and then working backwards, as most people do.”  Professor Michael Fitzgerald, Trinity College Dublin

Despite the challenges that they may face, research has shown that neurodivergent individuals also demonstrate a number of strengths of particular relevance to employment.

People on the autistic spectrum are often good problem solvers and innovative thinkers, with particular strengths in analytical thinking, memory, pattern recognition, and attention to detail. Some often have an exceptional ability to assimilate and retain detailed information, which can result in highly specific interests and technical abilities in specific areas of work.

Likewise, individuals with ADHD can have strong visual spatial reasoning and creative thinking abilities, and can be hyper-focused, passionate and courageous. Indeed, many of the world’s top entrepreneurs – including Sir Richard Branson – have ADHD.

As such, forward-thinking employers are beginning to recognise that they are missing out on a large pool of potential talent. Large-scale corporations like Microsoft, JPMorgan, EY, SAP and Ford have all recently instigated neurodiversity initiatives. There has also been an increase in the number of small companies that employ almost exclusively autistic people – such as IT and compliance consulting business Auticon – and specialist employment agencies – such as Specialisterne – that help match autistic candidates with employers looking for specialist technical skills.

What can employers do?

Traditional workplaces are built to suit “neurotypical” people. However, employees who fall slightly outside the range of what is considered typical often have valuable skills that employers need, such as lateral thinking or innovative problem-solving. It’s necessary to make adjustments for people on an individual basis to ensure they can perform their best in their role.” Ray Coyle, UK CEO of Auticon

There are a number of things that employers can do to help support employees with autism in the workplace. Many of these are low-cost and easy to implement, and have the potential to benefit all employees. The Chartered Institute of Personnel and Development (CIPD) recently published guidance for employers on becoming ‘neurodiversity smart’ – covering areas such as recruitment, induction, management and provision of on-the-job support for neurodivergent employees.

They recommend considering alternatives to recruitment interviews that focus on the ability to perform the job role to ensure that organisations are not unintentionally screening out neurodivergent individuals. These may include work trials, work samples, practical assessments, and mini apprenticeships. They also suggest providing candidates with detailed information about what to expect, being clear about the purpose of assessments and being aware of the bias of ‘first impressions’ and the limits of interviews to judge on-the-job performance.

In the workplace, suitable adaptations may include enabling employees who are disturbed by open-plan offices to wear earphones or face a wall, or to work from home where possible. Other adaptations may include the provision of formal or informal coaching or mentoring, regular breaks and access to flexitime, training and support for managers and colleagues, access to quiet spaces, flexibility regarding communication preferences, and clarification of any ‘unwritten’ organisational rules or office etiquette.

There is no ‘one-size-fits-all’ response. What is key is that the support provided is both personalised to suit the needs of the individual employee, and sustained over time. It is also important that a culture is fostered where it is easy for employees to disclose their condition, to be open to suggestions for adaptations that suit each individual’s needs, and to raise wider awareness and understanding of neurodiversity among employees.

Neurodiversity smart

Making reasonable adjustments is a cost-effective benefit to society; we also have a moral and ethical duty to act inclusively. We could view the pool of potential employees with neurodiverse conditions as untapped talent, rather than an employment burdenBritish Psychological Society, 2017

The UK government has also committed to halving the disability employment gap by 2020. In order to achieve this, the number of autistic people in employment will have to double. Employers also have a legal duty to make reasonable adjustments under the Equality Act.

However, becoming ‘neurodiversity smart’ is not just a legal or moral obligation – it is also essential if organisations are to harness the skills of this significant pool of untapped talent.


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Why the digital divide matters for children’s future prospects

By Steven McGinty

One of the biggest myths of modern times is that all children and young people are ‘digital natives’. That is, they have developed an understanding of digital technologies as they’ve grown up, rather than as adults. But this view has been heavily contested, with research highlighting that young people are not a “homogeneous generation of digital children”.

In the media, the issue is rarely given attention. Instead, news reports focus on the use of futuristic technologies in the classroom, such as East Renfrewshire Council’s recent announcement of their investment of £250,000 in virtual reality equipment. The less spoken truth is that many children and young people are leaving school without basic digital skills.

In 2017, the Carnegie Trust UK published a report challenging the assumption that all young people are digitally literate. They highlighted that as many as 300,000 young people in the UK still lack basic digital skills, and that although more are becoming digitally engaged, the division is deepening for those that remain excluded.

In particular, the report highlighted that vulnerable young people are most at risk, such as those who are unemployed, experiencing homelessness, living in care, in secure accommodation, excluded from mainstream education, or seeking asylum.

Research by the UK Digital Skills Taskforce has also found that many young people lack digital skills. However, an arguably more worrying finding from their study was that 23% of parents did not believe digital skills were relevant to their children’s future career success. This suggests that digital literacy is as much associated with socio-cultural values as to whether you are Generation X or Generation Y.

Similarly, the CfBT Education Trust examined the digital divide in access to the internet for school students aged five to 15. It found that children from households of the lowest socio-economic class access the internet for just as long as those from other backgrounds, but they are significantly less likely to use the internet to carry out school work or homework. As a result, the report recommended that interventions should not focus on improving access but rather ensuring that students are using technology effectively.

Further research by the CfBT Education Trust found that only 3% of young people did not have access to the internet, and suggested that schemes which provide students with free equipment are in danger of wasting resources.

Many believe digital skills are essential for academic success. This includes the House of Lords Select Committee on Communications, who in 2017 recommended that digital skills should be taught alongside reading, writing and mathematics, rather than in specialist computer science classes.

Research, however, is unclear on the digital divide’s impact on educational performance (for example, research has shown that smartphone use has no impact on education attainment). But teachers are concerned about their pupils, and in a 2010 survey 55% of teachers felt that the digital divide was putting children at a serious disadvantage.

However, there are organisations offering hope to young people. For instance, Nominet Trust’s Digital Reach programme is working with leading youth organisations to increase digital skills amongst some of the UK’s most disadvantaged young people. Vicki Hearn, director at Nominet Trust, explains that:

Digitally disadvantaged young people are amongst the hardest-to-reach and we need new models to engage with them to disrupt the cycle of disadvantage and exclusion. Our evidenced approach gives us confidence that Digital Reach will have a tangible impact on the lives of those who have so far been left behind.”

Final thoughts

Whether someone has digital skills or not is often a mix of their socio-economic class, cultural values, and even personality traits. However, if everyone is to prosper in a digital society, it will be important that all children and young people are encouraged to develop these digital skills, so they can utilise the technologies of tomorrow.


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Addressing social mobility through education – is it enough?

School children raising hands. View from behind.

We looked at the issue of social mobility and education last October, highlighting that although there has been continued investment by successive governments, the rate of progress is slow:

“it has been estimated that at the current rate of progress it will take 50 years to close the attainment gap for disadvantaged pupils in England.”

Since then, it seems the situation surrounding social mobility has become even more precarious.

Key priority?

The issue of social mobility is an historic one and it is claimed to be a key priority for the current government, which is working towards addressing the issue through education via its recently published national plan and the work of the Opportunity Areas programme.

However, in December all four board members of the Social Mobility Commission (SMC) resigned over the government’s lack of progress on social justice, and in January, Education Secretary, Justine Greening, who played a key role in both the Opportunity Areas programme and social mobility action plan, also resigned.

The resignation letter of the Chair of the SMC, Alan Milburn, praised Justine Greening for having “shown a deep commitment to the issue”, but noted that “it has become obvious the government as a whole is unable to commit the same level of support.”

The last publication of the SMC, published in November, highlighted the existence of “a stark social mobility postcode lottery” in Britain and substantial inequalities in educational attainment linked to social disadvantage and place. The derailment of the SMC and subsequent loss of an education secretary openly committed to the issue, can therefore only be cause for concern.

Nevertheless, the government continues to stress its ambition of ‘no community left behind’, with a continued focus on initiatives such as Opportunity Areas.

Opportunity Areas

Opportunity Areas are part of the government’s national plan for dealing with social mobility through education.

The programme targets £72 million of funding at 12 areas identified as the most challenged when it comes to social mobility. The first six areas were announced in October 2016, with a further six announced in January 2017. The aim is to bring together schools, colleges, universities, early years providers and employers to improve the life chances of disadvantaged children.

The 12 areas will also have priority access to other government support including the Teaching and Leadership Innovation Fund worth £75 million, focused on supporting teachers and school leaders in challenging areas to develop. And a new £3.5 million programme will support the creation of a research school for each opportunity area.

While the programme has been welcomed by many, it has also been criticised.

The Education Policy Institute (EPI) has recognised it as a ‘good start’, but highlights that there are numerous other areas across the country that are not covered by the programme where social mobility is stagnating or even getting worse. It also suggests that the system continues to fail to meet the needs of certain vulnerable groups, including those with special educational needs and disabilities, those from Gypsy Roma or Traveller communities, and Black Caribbean children.

Concerns have also been raised over challenges facing the programme, which included capacity, including the risk of overloading the system.

Other concerns that have been recently cited have included school funding cuts, which could effectively cancel out the programme’s funding for some, and the criteria used to select areas, which could be an issue while there is a lack of clarity on the relationship between social mobility and disadvantage.

Education Datalab has argued that targeting through geography alone is inadequate and that both area-based and individual focused policies are needed.

Way forward

Much of the commentary on the social mobility issue has hinted at the need for a national, rather than or in addition to  a local focus. Indeed, the SMC recognised the need for a more wide-ranging government response in its assessment of policies on social mobility published last year.

And in its new report out last week, the Education Select Committee called for greater powers and resources for the SMC to enable it to tackle social injustices effectively. It also suggests, based on evidence from the former members of the SMC, that the government needs to co-ordinate the social justice agenda from the centre to ensure all departments are aiming in the same direction.

The government’s plan for addressing social mobility through education clearly acknowledges the scale of the challenge:

“this plan is only an important step in a long-term process to improve social mobility and spread equality of opportunity… To achieve this will take time, it will take an incredible amount of determination and focus, and it will take an unprecedented partnership. But, together, it is possible.”

But if the government fails to adopt a more wide-ranging response to promoting social mobility, as so many have advocated, perhaps it will take even longer to achieve than previously estimated.


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Youth participation and citizenship: hearing young people’s voices in North Ayrshire

2018 is the year of young people in Scotland. The idea is to inspire Scotland through its young people, celebrating their achievements, valuing their contribution to communities and creating new opportunities for them to take the lead.

Research published by the Scottish Government in 2018, Young people’s participation in decision making in Scotland: attitudes and perceptions showed that while many thought “adults” were good at listening to their views, many other barriers to having their views and opinions heard existed for young people. One of the main challenges was a feeling that young people’s views are discarded because “‘it doesn’t fit with what they (adults) want to hear”.

Hearing young people’s voices

The North Ayrshire Youth Participation and Citizenship strategy is a “unique and transferable” youth-friendly children’s rights engagement process, which informs local policy, corporate priorities and strengthens the voices of young people in local communities.

The framework “values and respects” youth participation as fundamental in the ongoing work to enable all aspects of community life to prosper. The programme of youth engagement undertaken at North Ayrshire saw them awarded a COSLA Gold award in a ceremony at the end of 2017.

The Youth Participation and Citizenship strategy sets out how young people across North Ayrshire can play an active role in their schools and communities. The framework encourages and supports the engagement and participation of young people across a range of areas including:

  • YouthBank YouthBank Scotland is a grant making and empowerment initiative run by young people for young people. It builds on young people’s skills and experiences to enable them to give cash for action, funding young people’s ideas for the benefit of the wider community.
  • Participatory budgeting initiatives  where young people can help to decide on funding applications for local projects.
  • Local participation initiatives – including Youth Forums, Pupil Councils, North Ayrshire Youth Council, Youth Groups, Eco Committees, Sports Leadership and Peer Education schemes.
  • National participation initiatives  the Scottish Youth Parliament, British Youth Council and the Lesbian, Gay, Bisexual, and Transgender (LGBT) National Youth Council.

In December 2017, North Ayrshire launched its Year of Young People 2018 plan. Activities include ‘Joint Cabinet Live’ which will bring together young people from all over North Ayrshire via a live video link, to interact with the Council’s Cabinet Members on the issues faced by young people living in the area.

Co-production and giving young people a choice

There is a strong focus on co-production, facilitating decisions to be made with, not to young people. There is also an understanding that engaging young people in all aspects of community life, both at a social and an administrative level can have positive consequences for the whole community, not just for the young people who participate.

The council engages with young people to ensure that they know their voices are heard and that council policy reflects their needs and aspirations for the future. It builds the skills and confidence of young people who have the opportunity to participate and can strengthen community engagement and cohesion as more people become involved.

As part of the North Ayrshire participatory budgeting initiative, funding was allocated to youth projects across North Ayrshire, and young people given the opportunity to vote for where they thought the money should be spent. Each young Scot in North Ayrshire, was able to vote for three projects they thought would most benefit from receiving funding (projects varied depending on which North Ayrshire locality they lived in, but were all organised either by or for the benefit of young people in the region). They were able to vote in school, as well as in colleges, local youth clubs, or from home using their Young Scot card number to go online and register their choices. The results were announced on 9 February 2018 and saw funding allocated according to the votes of young people, with almost 7000 young people taking part, almost 50% of those eligible.

Award winning approach

In 2017, the North Ayrshire youth services team were awarded the COSLA gold award for their efforts. The award recognised the work of  the Youth Services team in creating a culture of participation, which allows young people to have a real impact in shaping the services the Council delivers. For example, the Council operates a joint Youth Cabinet, which allows young people to work alongside Elected Members and be directly involved in the decision-making process.

North Ayrshire’s engagement approach has been seen as a blueprint for engagement across the community within towns and cities across Scotland. Three months into the “Year of Young People”, other local authorities are being encouraged to follow suit and rethink how they engage and use the voices and opinions of young people within their communities to support inclusive decision making.

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