“All the lonely people” – tackling the epidemic of loneliness

Prior to the coronavirus pandemic, the UK was already experiencing what had been described as an ‘epidemic’ of loneliness.  The various lockdowns and social restrictions that were put in place to reduce the spread of the virus have exacerbated this already troubling situation.

Indeed, according to recent research by the Mental Health Foundation, 1 in 4 UK adults (25%) have felt lonely some, or all of the time, over the previous month; and 1 in 4 UK adults (25%) felt ashamed about being lonely.

With the huge impact this can have on mental health, it’s no surprise the theme of this year’s Mental Health Awareness Week was loneliness.

In its new report, “All the lonely people”, published as part of Mental Health Awareness Week, the Mental Health Foundation explores the clear links between loneliness and mental health, looking at what it’s like to be lonely, the causes, consequences and the groups of people who are more likely to experience severe and enduring loneliness.

All the lonely people

Through sharing the stories of nine individuals who often or always feel lonely, “All the lonely people” highlights the circumstances, situations and life events that can increase our risk of loneliness. It also investigates how well people understand loneliness and suggests ways that we can respond as individuals and across society.

While it is acknowledged that anyone can feel lonely, there are a number of risk factors that can increase the chances of severe and lasting loneliness that can impact mental health:

  • Being widowed
  • Being single
  • Being unemployed
  • Living alone
  • Having a long-term health condition or disability
  • Living in rented accommodation
  • Being between 16 and 24 years old
  • Being a carer
  • Being from an ethnic minority community
  • Being LGBTQ+

The health and financial impact of loneliness

Loneliness can have a huge impact on health, life expectancy and mental wellbeing. Research has shown that loneliness can be as harmful as smoking 15 cigarettes a day or having alcohol use disorder. Moreover, it has also been found to be more harmful than obesity. Not only does this have implications for individuals but also for wider society and the economy.

Recent government research estimated that the wellbeing, health and work productivity cost associated with severe loneliness (feeling lonely “often” or “always”) on individuals was around £9,900 per afflicted person per year. Other research has estimated that loneliness costs UK employers between £2.2 and £3.7 billion a year and that an estimated £1,700 per person (2015 values) could be saved over 10 years if action could be taken to reduce loneliness.

Given the significant health impacts and associated costs, the Mental Health Foundation report argues that preventing the development of loneliness should be a key priority and that a greater awareness of the risk factors and triggers needs to be created.

Public understanding but stigma remains

In terms of public understanding, the report asserts that the public has a good understanding of the link between loneliness and mental health. However, there is still significant stigma surrounding loneliness. Of the adults surveyed, 76% thought ‘people often feel ashamed or embarrassed about feeling lonely’. Only 29% of respondents agreed that ‘people who feel lonely are likely to talk about it, if they get the opportunity’. And people who experience loneliness themselves were more likely to recognise this sense of shame.

This stigma makes it difficult for people to talk about due to fears of discrimination or prejudice. Stereotypes about loneliness also still persist which can lead to some lonely people being overlooked. The findings show that despite the public’s understanding, there is a tendency to overlook certain at risk groups such as students, carers and LGBTQ+ people. People also tend to overestimate the link between loneliness and ageing or living in rural areas.

The survey found that people tended to believe that older people were more likely to feel lonely than younger age groups – 63% thought that being older (over 65) might contribute to someone feeling more lonely, whereas only 12% of respondents identified that being younger (aged 16-25) might contribute to someone feeling more lonely. This contradicts recent ONS data, which found that there were higher rates of reported loneliness among younger age groups.

Similarly, people tended to believe people living in rural areas would be more likely to experience loneliness (40% of people thought that living in a rural area could contribute to loneliness, compared to just 23% for living in a city). However, once again, the evidence suggests the opposite, with people living in urban areas reporting higher levels of loneliness than those in rural areas.

The report notes that stereotypes such as these can inhibit people from recognising and responding to their own loneliness, further exacerbate existing stigma and potentially limit the support offered to those who feel lonely.

Broader awareness

The report argues that a wider understanding of the factors that can lead to severe and enduring loneliness is needed to successfully combat the stigma and stereotypes associated with loneliness.

The stories of the individuals who experience loneliness demonstrate just how complex it is and how difficult it is to spot those who may be ‘lonely in a crowd’. It is therefore also important to understand the different barriers to connection for different people. These can be practical (lack of time, access to transport), structural (discrimination or prejudice) or emotional (lack of confidence, anxiety).

The report argues that a broader awareness of these factors could help people to stop blaming themselves for being lonely, encourage creative ways of supporting people and enable tailored support being developed for groups who are particularly at risk of long-term loneliness.

Previous research has also highlighted the importance of tailored approaches and developing approaches that avoid stigma.

Tackling loneliness

While highlighting what individuals can do to help combat loneliness, the Mental Health Foundation also highlights the need for action on the different barriers to connection if it is be tackled long-term. To this end, it has identified five UK-wide policy recommendations to address loneliness in society:

  • taking a strategic approach to loneliness;
  • developing the community resources needed to tackle loneliness;
  • building a greener lived environment that supports social contact;
  • supporting children and young people with interventions in education settings;
  • ensuring that everyone has access to digital communication technology, and the skills to use it, and respecting preferences for non-digital forms of communication.

Each of us can play a part too. By sharing stories of loneliness and shining a spotlight on the issue, we can all help to promote wider awareness and break the stigma of loneliness.


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A road less travelled: celebrating Gypsy, Roma and Traveller History Month – part 2

June is Gypsy, Roma and Traveller History Month (GRTHM), which aims to raise awareness of and promote GRT history and culture.

It is widely recognised that raising awareness of different cultures is a key part of addressing prejudice and discrimination.

In this post – the second of two for GRTHM – we look at the inequalities and discrimination that GRT face across education, employment and health.  We also highlight work to address these inequalities and raise awareness of GRT communities’ rich cultural heritage.

GRT communities experience many educational and health inequalities

The recent House of Commons report, ‘Tackling inequalities faced by Gypsy, Roma and Traveller communities’, sets out a comprehensive review of the available evidence across a range of areas.

In education, Gypsy and Traveller children leave school at a much earlier age and have lower attainment levels than non-GRT children, and only a handful go on to university each year.  They also experience much higher rates of exclusions and non-attendance.

There are many reasons for this – from discrimination and bullying, to a lack of inclusion of GRT within the educational curriculum. There are also cultural issues to be addressed within the GRT community itself.

Scottish Traveller activist Davie Donaldson has spoken about the discrimination he faced in school where a teacher refused to “waste resources” by marking his homework because he was a Traveller, who she assumed was “not going to do anything with his education anyway”.  He also discusses how many Travellers within his own community felt he was betraying his roots by attending university. This clearly illustrates the multi-faceted nature of the issue of supporting GRT children in education.  The Traveller Movement addresses this and other related issues in their recently published guide to supporting GRT children in education.

Health outcomes for GRT communities are also very poor compared to other ethnic groups.  Their life expectancy is 10 to 12 years less than that of the non-Traveller population.  Maternal health outcomes are even more shocking – with one in five Gypsy Traveller mothers experiencing the loss of a child, compared to one in 100 in the non-Traveller community.

Poor health outcomes can be partially attributed to the difficulties that many experiences when accessing or registering for healthcare services due to discrimination or language and literacy barriers.  There is also a lack of trust among GRT communities which can result in a lack of engagement with public health campaigns.

Historic fear of engagement with public services

Indeed, there is a historic wariness of public services among many in the GRT community.

In the 1800s, many Travellers had a well-placed fear of the ‘burkers’ – body-snatchers looking to provide the medical schools with bodies for dissection.  Travellers felt particularly at risk because they lived on the margins of society.  There are many Traveller stories about burkers that have been passed on from generation to generation.

Similarly, a fear of social services intervention also exists, following the forced removal of children from Traveller families.  Some were taken into care, and others were deported to be servants in Canada or Australia.

Being aware of these cultural issues, along with the historic criminalisation and continued discrimination that GRT communities face, can help health and social services to understand and empathise with the GRT community when reaching out to them.

Poor employment outcomes and a lack of target support

Gypsies and Travellers were an essential part of the economy in the 19th Century and early 20th Century.  Many were skilled tinsmiths, silversmiths, basketmakers or other crafters.  They also played an important role as seasonal agricultural workers – for example, in the berry fields of Blair and farms of the north east of Scotland.  They moved from place to place, and bringing news and selling and trading their wares.  In the days before roads and motor vehicles, they were a lifeline for rural crofting communities who may have been many days travel away from the nearest settlement.

Time has rendered many traditional Traveller occupations redundant, and today employment outcomes for GRT groups are generally poor.

While more likely to be self-employed than the general population, the 2011 England and Wales Census found that Gypsies and Irish Travellers were the ethnic groups with the lowest employment rates, highest levels of economic inactivity, as well as the highest rates of unemployment.

However, unlike other minority groups, there has been no explicit government policies that support Gypsies or Travellers to enter employment or to take up apprenticeships and/or other training opportunities.  Many Gypsies and Travellers have also reported being discriminated against by employers, making it more difficult for them to find and stay in work.

A lack of robust data

There is a lack of robust data about the different GRT groups in the UK – even something as seemingly simple as how many GRT people there are.

This is because most data collection exercises – including the Census and in the NHS – do not include distinct GRT categories.  If an option exists at all, often it conflates the different GRT ethnicities into one generic tickbox, with no way to differentiate between the different ethnic minorities.  This is an issue that is being increasingly addressed and there are plans to include a Roma category in the 2021 census.

However, there are also issues with under-reporting.  Many people from GRT communities are reluctant to disclose their ethnicity, even when that option is available to them.  This stems both from a lack of trust and the fear of discrimination.

So, while the 2011 Census recorded 58,000 people as Gypsy/Traveller in England and Wales, and a further 4,000 in Scotland, it is estimated that there are actually between 100,000 to 300,000 Gypsy/Traveller people and up to 200,000 Roma people living in the UK.

Raising awareness of GRT culture

While this all may make for some pretty depressing reading, there are some promising signs of progress.

From Corlinda Lee’s Victorian ‘Gypsy Balls’ – where the curious public could pay to come and see how a Gypsy lived and dressed, to Hamish Henderson catalysing the 1950s Scottish Folk Revival with the songs and stories of Scottish Travellers – there have been attempts to promote Gypsy and Traveller culture among the settled population.

Today, organisations and individuals such as The Traveller Movement, Friends, Families and Travellers, and Scottish Traveller activist Davie Donaldson strive to promote awareness of and equality for the GRT community.

The recent Tobar an Keir festival held by the Elphinstone Institute at Aberdeen University sought to illustrate traditional Traveller’s skills such as peg-making, and there is a wonderful Traveller’s exhibition – including two traditional bow tents – at the Highland Folk Museum in Newtonmore.

There are even more events planned for GRTHM – including an exhibition of Travellers’ art and photography at the Scottish Parliament.

The hard work may be beginning to pay off – just last week, the government announced a new national strategy to tackle the inequalities faced by Gypsies, Roma and Travellers.

Using knowledge to fight prejudice

While there is without doubt an urgent need for practical measures to address the inequalities that the GRT community face – such as an increase in the number of authorised sites available – addressing the fundamental lack of awareness and knowledge of GRT culture is a key step towards eradicating prejudice towards GRT communities.

As well as raising awareness among the general public, there is also a need to for people working in public services – from health and social services to education and even politics – to have a better awareness and understanding of Traveller culture and history, and how this affects their present day needs and experiences.

Gypsy, Roma and Traveller History Month is an ideal opportunity to address the huge gap that exists in society’s collective knowledge about the GRT way of life, their history, culture and contribution to society. All of which can help to combat the prejudice and discrimination that they continue to face.


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A road less travelled: celebrating Gypsy, Roma and Traveller History Month – part 1

Traditional Scottish Traveller bow tent at the Highland Folk Museum, Newtonmore

This month is Gypsy, Roma and Traveller History Month (GRTHM).

GRTHM aims to celebrate and promote awareness of Gypsy, Roma and Traveller (GRT) history, culture and heritage, and the positive contribution that GRT groups have made and continue to make to society.  It also seeks to challenge negative stereotypes, prejudices and misconceptions associated with GRT groups.

Over the next two blog posts, we will raise awareness of the many issues faced by GRT communities in the UK today, and highlight some lesser known aspects of GRT culture and heritage.

Gypsies and Travellers are not a homogenous group

One common misconception is that Gypsies, Travellers and Roma are a homogenous group.

In fact, GRT is a term which encompasses many distinct ethnic groups with their own cultures, histories and traditions.

This includes Romany Gypsies, who today are generally of English or Welsh heritage.  Gypsies first arrived in Britain in the 16th Century. The term ‘Gypsy’ was coined due to a common misconception that Gypsies originated from Egypt. However, recent DNA studies suggest that they actually originated from the Indian subcontinent.  Some Gypsies may prefer to be known as either English Gypsies or Welsh Gypsies specifically.

Irish Travellers are Travellers with Irish roots, however, a recent DNA study suggests they have been genetically distinct from the settled Irish community for at least 1000 years. Irish Travellers have their own language – Shelta (also known as Cant).

Scottish Gypsies/Travellers are indigenous to Scotland.  Their exact origins are uncertain, but it is thought that they may be descended from the Picts, and/or the scattering of the clans following the Battle of Culloden in 1746.  Certainly, Scottish Travellers tend to share many of the same Clan surnames – including Stewart, McMillan, McPhee and McGregor.

Scottish Travellers also have their own language – the Gaelic-based Beurla Reagaird.

European Roma are descended from the same people as British Romany Gypsies, and they are Gypsies/Travellers who have moved to the UK from Central and Eastern Europe more recently.  Some have arrived as refugees and asylum seekers. While they face many of the same issues as Gypsies, Irish and Scottish Travellers, they are also subject to a number of additional challenges.

There are also other groups that are considered ‘cultural’ rather than ‘ethnic’ Travellers.  These include Occupational Travellers such as fairground and circus owners and workers and New Age Travellers – individuals who have chosen a travelling lifestyle for ideological reasons.

Distinct ethnic minorities protected by law

Whilst there are some similarities between GRT groups in terms of lifestyle, economic, family and community norms and values – and certainly in terms of the discrimination and poor outcomes that they experience – there are clear genetic differences between each of the groups.

As such, Gypsies, Irish Travellers and Scottish Travellers are each considered ethnic minorities in their own right and protected as “races” under the Equality Act 2010.  Migrant Roma are protected both by virtue of their ethnicities and their national identities.

However, despite this protection, GRT groups are still subject to high levels of discrimination.

‘The last acceptable form of racism’

Indeed, prejudice and discrimination has affected GRT groups throughout history.

In the 16th century, any person found to be a Gypsy could be subject to imprisonment, execution or banishment.  Even after anti-Gypsy laws were repealed, discrimination continued.  In the 19th and early 20th centuries, it was not uncommon for doctors to refuse to attend to Travellers.  And despite Travellers’ strong Christian beliefs, churches would often refuse to bury their bodies within their grounds.

And today, GRT people have the worst outcomes of any ethnic group across a huge range of areas, including education, health, employment and criminal justice.  They have the poorest health and the lowest life expectancy of any ethnic group in the UK, and are subject to high levels of racism and hate crime.

GRT groups still face barriers to accessing health services.  As part of a mystery shopper exercise by the Friends, Families and Travellers (FFT) charity, 50 GP practices were contacted by an individual posing as a patient wishing to register without a fixed address or proof of identity. They found that almost half would not register them, despite NHS guidance to the contrary.

And while racism towards most ethnic groups is now seen as unacceptable and less frequently expressed in public, racism towards GRT groups is still common and often overt – even among those who would otherwise consider themselves ‘liberal’ or ‘forward thinking’.  This had led it to be termed “the last acceptable form of racism”.

The 2015 Scottish Social Attitudes Survey found that over 30% of people in Scotland would be unhappy with a close relative marrying a Gypsy or Traveller, and 34% felt that Gypsies or Travellers were unsuitable as primary school teachers.

Research by Travellers Movement has found that four out of five (77%) of Gypsies, Roma and Travellers have experienced hate speech or a hate crime – ranging from regularly being subject to racist abuse in public to physical assaults.

Prejudice and discrimination against GRT groups is not limited to the public – there is also evidence of discrimination against GRT individuals by the media, police, teachers, employers and other public services.

Even politicians have openly displayed anti-GRT sentiment.  In 2017, the Conservative MP for Moray Douglas Ross, stated that he would impose “tougher enforcement against Gypsy Travellers” if he were Prime Minster for the day.

His remarks were widely criticised.  Amnesty International’s Scottish director, Naomi McAuliffe, said “When our elected leaders use this sort of blatantly partisan speech, they set a terrible example that only serves to foster further discrimination and prejudice.”.

A lack of sites has led to a ‘housing crisis’

Mr Ross’s remarks reflect another common misconception about GRT communities – that they all live in caravans, purposefully choosing to set up on unauthorised sites.

The truth is that while Gypsies and Travellers have traditionally lived a nomadic life, living in bow tents, wagons – and even caves – over 70% of Gypsies and Travellers no longer live in caravans, having chosen, or being forced for one reason or the other – disability, old age, lack of suitable sites – to move into traditional ‘bricks and mortar’ accommodation.

For those who do still live in caravans, it is widely recognised that they face a ‘housing crisis’ – an urgent shortage of authorised sites to set up on, which threatens their travelling heritage.  It is this shortage that drives much of the use of unauthorised sites.

Of those sites that do exist, quality has been raised as a key issue.  Many sites can lack even the most basic amenities, and some are sited near recycling plants or in other undesirable locations.  Poor conditions and sanitation contributes to poor levels of health, exacerbating existing health inequalities.

Further inequalities

In our next blog post, we will look in more depth at the inequalities that GRT communities face – in health, education and employment.  We also highlight work to address these inequalities and raise awareness of GRT communities’ rich cultural heritage.


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Turning the tide on perceptions of value: what do students think value for money really means?

A little over a year and half since we last wrote about the value of higher education (HE), which highlighted a downward trend in perception of value, it would seem the tide may be turning.

As we previously highlighted, one of the headline findings of the Higher Education Policy Institute’s (HEPI’s) 2017 Student Academic Experience Survey was falling perceptions of value for money, with the percentage of students perceiving university not to be value for money almost doubling in the previous five years. But the 2018 survey highlights a distinct turnaround, with students reporting “statistically significant improvements in perceptions of value for money from their higher education experience.” Could this be the start of a new trend?

‘Promising upturn’

Among the main highlights of the 2018 survey, which describes a “promising upturn”, include:

  • 38% of students in the UK perceive ‘good or very good’ value from their HE course – an increase of three percentage points from last year’s survey, reversing a five-year downward trend
  • fewer students studying in the UK (32%) perceive ‘poor’ or ‘very poor’ value, compared with 34% in 2017
  • there is a clear, statistically significant, improvement among students from England, representing the largest number of students, where 35% report ‘good’ or ‘very good’ value
  • there has been an improvement among students domiciled in Scotland (though not statistically significant) where 60% of students surveyed perceive ‘good’ or ‘very good’ value, continuing to report the most positive opinions overall, while students from Wales and EU students studying in the UK report similar perceptions of value as last year, 48% and 47% respectively. Perceptions of value in Northern Ireland remain in decline – albeit not statistically significant
  • Students at institutions which secured a Gold award in the Teaching Excellence Framework are more likely to perceive they have received good value, but there is no noticeable difference on this measure between Silver and Bronze-rated institutions

While it should not be forgotten that almost a third of students still perceive poor value, which remains a concern, this reversal of a five-year trend is undoubtedly encouraging. Moreover, what makes the latest HEPI survey particularly interesting is that for the first time, it includes evidence on what lies behind these perceptions.

What does value for money mean?

As our previous blog showed, the increasing cost of HE has contributed to the decline in perceived value for money as many believe the financial cost is not worth the career prospects. But it isn’t all about the financial element, although, as has been previously argued, perceptions of quality are not always clearly articulated. To help make things clearer, the latest survey incorporates new sections on: what factors relate to good or poor value, happiness with subject choice and experiences of different ethnic groups.

These new sections provide greater insight into just what students perceive as value for money. Interestingly, when asked about what factors influence their perceptions of value (chosen from a pre-defined, randomised list), 68% of students who felt they received ‘good’ or ‘very good’ value for money regard teaching quality as the most important factor behind this, followed closely by course content (67%) and facilities (62%).

None of the top five reasons for perceiving ‘good’ or ‘very good’ value related to financial cost, whereas price dominated the list for poor value where two out of the five most popular answers related to cost – tuition fees (62%) and cost of living (37%). The survey suggests that these findings indicate that cost and value are difficult to separate in the minds of students and that a perception of value for money can be difficult to attain given the level of current fees.

Career prospects and campus environment and university buildings were also cited as significant factors driving good value. This suggests that investment in the physical environment should be included among other priorities, given its status as a ‘major contributor’ to the student experience.

No time for complacency

Despite these promising findings about the student experience, there are still real concerns. Perhaps somewhat worrying is the finding that past gains in teaching quality have not been built upon, with students’ ratings of teaching staff down slightly on last year. Given the importance of teaching quality in perceptions of value, if this does not change it could very well contribute to a return to the downward trend in value perceptions.

Other concerns highlighted by the survey, include  perceptions of the wellbeing of students, which remain relatively low and continue to fall. In addition, some ethnic minorities tend to experience barriers and have lower perceptions of value.

As highlighted by Nick Hillman, Director of HEPI and a co-author of the report, the survey “exposes the areas where improvements are needed.” He also argues that “institutions have to work harder to ensure all students are catered for in full.”

Nevertheless, the survey emphasises that the fact the student experience remains positive should be recognised, particularly given the level of financial burden that students take on and the widening range of alternative routes available. Hopefully, the next survey will reveal a continuation of the upward trend in perceptions of value.


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Autism-friendly cities: making a world of difference

At this time of year, high streets and shops across the country are bustling, decked out with lights and colourful decorations, and of course, the familiar Christmas tunes.

For many, this is part and parcel of the exciting run up to Christmas.  However, for autistic people, the added crowds, lights and noise can turn an already challenging experience into a sensory nightmare.

Indeed, although more than 1 in 100 people in the UK are on the autism spectrum, many still struggle to access local shops and services.  Places that many neurotypical people may take for granted – shops, theatres, cinemas, cafes and restaurants, hairdressers, libraries and museums, public toilets, and public transport – can be particularly challenging environments for autistic people.

Unpredictable and unfamiliar noises, lights, smells, crowds, queues, and other events can be overwhelming, and may cause sensory distress – ultimately leading to a meltdown.  Meltdowns may present as crying, screaming, kicking, biting or lashing out.  A lack of understanding and awareness of autism among the public – including unfriendly looks, judgements and comments – can further enhance the distress experienced.

In 2015, a YouGov poll found that 99.5% of people in the UK had heard of autism. However, there remains a lack of public understanding about how it may present, and the associated challenges autistic people face.  This is perhaps best illustrated by the recent case of a young woman with Asperger’s being forcibly removed from a cinema for ‘laughing too loudly’.  Unfortunately, this experience is not unique.  Research has found that as many as 28% of people have been asked to leave a public space because of behaviour associated with autism.

Indeed, many autistic people and their families have changed their own behaviour to reduce the chance of experiencing intolerance from the public.

It’s perhaps not surprising, then, that social isolation is a common issue – 79% of autistic people and 70% of parents feel socially isolated.  Almost half (44%) sometimes don’t go out because they’re worried about how people will react.

Increasing public understanding

The recent Too Much Information (TMI) campaign, delivered by the National Autistic Society (NAS), aims to increase public understanding of the five core features of autism.

Those five core features are:

  • anxiety in social situations
  • anxiety with unexpected changes
  • sensory overload
  • meltdowns
  • processing time

Creating an autism friendly city

One response has been the drive towards the creation of ‘autism-friendly’ cities.

According to Autism Together and Autism Adventures, an autism-friendly city is one in which autistic people can ‘use public transport, shop for food and clothes, take part in sports and leisure activities, visit cultural and tourist institutions and eat in restaurants.’

The NAS have established an ‘Autism Friendly Award’, which aims to help businesses make the small changes that make the most difference to autistic people.  Their Autism Friendly Awards toolkit sets out a helpful five-point checklist:

  • customer information: providing appropriate information to help support autistic people and their families’ visitor or customer experience
  • staff understanding of autism: developing staff understanding
  • physical environment: making appropriate and reasonable adjustments within the limits of the physical environment
  • customer experience: a willingness to be flexible and providing a clear way for autistic people and their families to provide feedback
  • promoting understanding: committing to helping increase wider public understanding of autism

Examples of good practice

In Glasgow, the council have been working to make the city centre autism-friendly.  The plans have focused initially upon shopping centres, transport hubs, museums, cinemas and key operational staff across the city centre.

The Glasgow Film Theatre (GFT), Scotland’s oldest independent cinema, recently became the first cinema in the UK to achieve an Autism Friendly Award for their work with children and adults.  This includes monthly screenings for autistic adults and children, with the volume slightly lowered, stair lights remaining switched on, house lights dimmed and a chill out zone provided. Trained ‘autism facilitators’ also answer questions at the end of each film.

Other organisations have followed the GFT’s lead. Glasgow Science Centre, for example, has recently introduced autism friendly hours.

In the North East, Aberdeen has also announced its intention to work towards autism-friendly status.

As well as raising awareness and making key shopping locations more accessible for autistic people, Aberdeen also plans to introduce autism-friendly libraries, including pop up sensory sessions designed for autistic children.

Research has shown as many as 40% of people with autism never visit a library – however, 90% have said they would be more likely to visit their local library if some changes were made.

Such adjustments include staff training, increased tolerance of noise and understanding from the public.  Dimensions have released free online training and top tips for libraries looking to become autism-friendly. It notes that while many people with autism need a quiet environment, they may make noise themselves – for example, by talking to themselves or others, becoming excitable or moving around. They highlight the importance of making clear to the public that the library is autism-friendly, which includes a tolerance of certain levels of noise.

Other cities that have been working towards autism-friendly status include: Bristol –  whose airport has won an Autism Friendly Award; Liverpool – where autism champions are being supported to recognise and respond to autism; and Newcastle in Northern Ireland – which has been named as Northern Ireland’s first autism-friendly town. It is anticipated that being autism-friendly will help boost the local economy and tourism.

Other ways to make cities autism-friendly

As well as organisations themselves making adjustments and promoting autism understanding among staff and customers, there are a few other ways in which cities can be made more autism-friendly.

Making public transport more accessible is a key challenge.  More than half of autistic people avoid public transport due to fears of disruption.  There are many things that can be done to help make public transport less distressing for autistic people.

From an architecture and design perspective, there are also many other things that can help to make urban buildings and spaces more accessible, in regard to ventilation, acoustics, heating, lighting, layout and outdoor spaces.

From a town planning perspective – there is currently a lack of research and guidance on the design of places for autistic people per se, however, there may be some transferability of lessons from work on the creation of dementia-friendly and child-friendly spaces.

For example, the provision of clear signage and removal of street clutter may be beneficial for autistic people.  Edinburgh City Council has recently banned on-street advertising structures in order to make streets more accessible for people with disabilities.

There have also been concerns raised that shared spaces – including the removal of road signs, traffic crossings and delineation between roads/walkways – may negatively impact upon autistic people, who may struggle with the uncertainty such schemes deliberately create.  This is an area where more research and guidance is needed.

The way forward

Creating a city that is autism-friendly requires a multi-faceted approach that includes both raising public awareness and understanding, and creating towns and places that allow for the specific challenges that are faced by autistic people and their families.

Many steps that can be taken are low cost and easy to implement – and support is available from a range of national and local autism organisations, such as the NAS.

Even just reacting with kindness and compassion when witnessing a possible autistic meltdown – perhaps offering some solution such as a quiet space – is significant.  The sum of these small changes can make a world of difference to autistic people and their families.

I wouldn’t change my son for the world but I will change the world for my son.” Julie Simpson, Founder of Autism Adventures


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University degrees – are they worth the cost?

college graduates group

By Heather Cameron

Often cited as the best path to a successful career, university degrees continue to come under the spotlight with questions over their actual value, particularly with tuition fees now starting to increase.

Millions of young people who received their exam results last month will be weighing up their options. But what was perhaps once a fairly straightforward decision for many, is made far more complex by the modern financial burden of undertaking a degree, coupled with the availability of alternative routes without the prospect of accruing tens of thousands of pounds worth of debt in the process.

Cost

It certainly isn’t a cheap option to pursue a university degree. For 2017, many colleges/universities across the UK will be able to charge tuition fees of up to £9,250. And this doesn’t include the living costs of student life. The National Union of Students (NUS) has estimated that the average annual cost of living in England (outside of London) for students is £12,056.

Recent YouGov Omnibus research, which surveyed more than 500 current students and recent graduates, found that one in three recent graduates disagreed that the “costs of going to university were worth it for the career prospects/learning I gained”. It also identified ‘significant pessimism’ among both graduates and students over loans and whether they will ever be free of the burden of repayments during their working life. A large proportion (41%) don’t expect to ever pay off their student loan.

However, it was also noted that many recent graduates may have false expectations about how much they will have to pay back. More than four in ten (41%) said they didn’t understand how the interest rate on student loans works.

Research into the number of ‘contact’ hours a student receives over the course of their degree has been suggested to support the opinion that it is not good value for money. The average humanities student will have around 10 hours per week of scheduled ‘contact’ time in lectures and seminars, although it is often less. And there is much variation across subject areas, which is not reflected in tuition fees. According to an economics lecturer at the New College of the Humanities in London, “It certainly seems like humanities students are subsidising Stem [science, technology, engineering and maths] students.”

Job prospects

In addition to the cost of doing a degree featuring in the decision to pursue this path, the employment prospects following a degree have also received attention.

A recent study from the Institute for Fiscal Studies (IFS) found that there is a great deal of diversity among graduate earnings. While almost all institutions have graduates with earnings above the 20th percentile of the non-graduate earnings distribution, and most institutions have graduates with earnings above the non-graduate median, graduate earnings for men at more than one in 10 universities were lower than for non-graduates. And earnings for graduate women were found to be worse at nine institutions of the 166 included.

The findings also show that that graduates who came originally from wealthier backgrounds earned significantly more than their poorer counterparts ten years after graduation, even if they had studied the same course at the same institution.

This also raises questions over the value of a degree, particularly for those students from poorer backgrounds.

Having a degree certainly doesn’t guarantee a job with a competitive salary at the end of it, or indeed even a job at all as previous research has shown. Nevertheless, the IFS findings do highlight that higher education does pay for the majority, with graduates more likely to be in work and earn more than non-graduates.

Satisfaction

Satisfaction with degrees among students has shown to be relatively high overall. The latest annual Student Academic Experience Survey reveals that most students believe they are learning ‘a lot’ and perceptions of teaching quality are rising.

However, the survey also shows there continues to be a downward trend in perceptions of value, which has been highlighted as a particular concern. The percentage of students who think university is not value for money has almost doubled in the last five years.

The wellbeing of students also continues to be relatively low compared to the rest of the population and the majority oppose the high-fees model of funding.

Final thoughts

The cost of pursuing a degree along with the evidence on graduate earnings suggests that higher education may no longer be the leveller it once was perceived to be. Rather, it may appear that university degrees are once again becoming a path only for those from the richest households.

Clearly there is a lot for policy-makers to consider.


If you enjoyed this blog post, you may also like our previous post on graduate employment.

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Who am I? The importance of life story books for looked after children

paper family on hand

By Heather Cameron

Every adopted child in the UK should have a life story book – an account of a child’s life in words, pictures and documents containing information on the child’s birth family, care placements and reasons for their adoption – which is given to them and their new family when preparing for a permanent placement.

Local authorities have a statutory duty to create life story books for all adopted children, providing them with a sense of identity and understanding of their early life before adoption. They are a well-established practice in the UK and most local authorities provide guidance on preparing them.

However, research has found that the quality of life story books varies hugely.

Variation in quality

The research, conducted by the Voluntary Adoption Agency, Coram, in collaboration with the University of Bristol, focused on adopters’ perspectives on their children’s life storybooks, which it identified as lacking from the academic literature.

Although adopters welcomed the idea of life story books, they were critical of their execution. And despite accounts of positive experiences, there was a broad consensus that:

  • many books were of poor quality;
  • children had been poorly prepared to explore their histories;
  • adoption professionals and agencies did not seem to prioritise life storybooks; and
  • adopters felt poorly prepared in how to use and update life storybooks with their children.

While 40% of adoptive parents said their books were ‘good’ or ‘excellent’, a third said they were ‘terrible’.

Issues were raised around lack of communication, opportunity to provide input and what was included in the books. One adopter said “We did not have the opportunity to discuss but what I would have said was this is rubbish – all of it is rubbish”. Another said “I can never show my daughter hers because there is stuff in there that I don’t ever what her to see”.

Another theme to emerge was an excessive focus on the birth family, foster family or social worker rather than the child, and the use of inappropriate language.

For those who regarded their books in a positive light, they believed the story was told well, was age appropriate and honest, and didn’t construct a ‘fairy tale’ that would give the child an unrealistic view.

Invaluable

For adopted children, life story books can be key to providing details of their history and background, providing continuity in their life histories and preparing them for a permanent placement.

Often, they are the only thing an adopted child has by way of personal, accurate and detailed information on their past. As one mother commented on the importance of birth photos, “It’s all they have left of their own babyhood”.

Done well, they can be invaluable, as described by one adopter:

‘a good quality life storybook builds a bridge back to that huge part of her that we didn’t see and it is her main link to her past’

It has therefore been argued that life story work should be prioritised and appropriate support provided.

Ingredients for success

Coram’s research highlighted several key things for successful life story work; one being having staff dedicated to life story work.

Bournemouth has been highlighted as an example of good practice for their life story work. Their separate adoption department appointed a dedicated family support practitioner to take on responsibility for the life story books for children adopted in Bournemouth.

In 2012, the council received an ‘outstanding’ rating by Ofsted and was named as joint adoption service of the year.

Also highlighted by the research, was that gaps in the narrative were not helpful, and support for adopters is paramount, as is training for social workers.

To improve the quality of life story work across the board, Coram’s report urges adoption agencies to make considerably better use of life story books and invest in improved training for professionals, while monitoring the quality of books produced and providing better access to support and guidance for adopters to engage in such important work with their children over time.

Bournemouth illustrates the importance of doing life story work well. And as the research concludes, “linking a child’s past and present is crucial ‘bridging’ work in enabling permanence in placements”.


If you enjoyed reading this, you may also like our previous articles on kinship carers and the value of foster care.

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The disability employment gap – what needs to be done to change employer attitudes to disability?

Disabled parking (1).jpg

By Heather Cameron

‘Employment rates amongst disabled people reveal one of the most significant inequalities in the UK today’ (The work, health and disability Green Paper, 2016)

The government’s recent green paper highlights the extent of the disability employment gap in the UK, showing that less than half (48%) of disabled people are employed, compared to 80% of the non-disabled population.

Despite an increase in the number of disabled people in work, this employment gap between the disabled and non-disabled population has remained largely static at around 30 percentage points for the past decade. There are nearly four million disabled people in work, but research has shown that more disabled people have fallen out of work than moved into work, while the rest of the population has experienced movement in the opposite direction.

The government’s manifesto ambition is to halve the disability employment gap by 2020 – equivalent to 1.12 million more disabled people in work – but at the current rate of progress, it has been suggested that it would take more than 200 years for the employment gap to halve.

At a time when the UK’s employment rate is at its highest level since records began, with almost 75% of the working population in work, this is a disheartening statistic.

Barriers

This suggests that disabled people continue to face significant barriers to work. Some that are regularly cited, include:

  • physical barriers such as access to transport and accessibility within places of work;
  • a skills and qualifications gap between the disabled and non-disabled population, with disabled people only about half as likely to go to university as non-disabled people, and less likely to take up an apprenticeship;
  • insufficient support for disabled people;
  • insufficient support for employers; and
  • employer attitudes.

Employer attitudes have been cited as an ongoing issue which appears to stem from a lack of awareness and understanding.

A recent survey of recruiters found that 95% said companies are ‘fearful’ or ‘unsure’ about hiring disabled people. And analysis from disability charity Scope, suggests that employer attitudes haven’t improved over the last four years.

A new report from the Work and Pensions Committee found that many employers are not sure of their Equality Act duties, or are unwilling to make adjustments for disabled employees. It also suggested that there may be ‘discriminatory or unhelpful attitudes’ about the capabilities of disabled people.

Employers’ views

Indeed, employers themselves have highlighted the challenges of employing disabled people. Recent research from Disability Rights UK, which surveyed businesses from across the UK, reveals that one in 10 businesses believe they are unable to employ disabled people.

It also found that the biggest challenge to employing disabled people is that applicants aren’t always willing to be open about their disability, with around half of respondents (47%) saying that it would help if job applicants were more willing to be open about their health condition. Other challenges highlighted include:

  • fellow staff or line managers not having sufficient training to support disabled colleagues, and the lack of accessibility of some businesses for people with certain types of impairments;
  • concern that disabled people are more likely to take time off work;
  • difficulties in discussing the management of disabilities;
  • the cost of modifying equipment, making it expensive to employ disabled people; and
  • concerns that disabled people will claim discrimination if the job does not work out.

Such concerns are often misplaced, however. The survey indicates that businesses feel constrained by a lack of information about the adaptions they may need to make, and the support available to them. It seems that not enough people are aware of Access to Work, the government scheme that provides grants for adjustments to support people with disabilities or health conditions in employment.

And not all attitudes were negative. The vast majority (84%) of respondents said that disabled people make a valuable contribution to the workplace; and more than four-fifths (82%) considered disabled people as productive as non-disabled staff.

Final thoughts

The research clearly demonstrates that more needs to be done to tackle the disability employment gap. The Work and Pensions Committee report concludes that the government will stand little chance of halving the gap unless employers are fully committed to taking on and retaining more disabled people.

In particular, a transformation in attitudes to disability employment and support for disabled people will be required.

As the government’s green paper argues, “real and lasting change will only come about if we can also address negative cultural and social attitudes about disabled people and people with long-term health conditions.”


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Is 20 plenty? The evidence for lower speed limits

20mph

Image from Flickr user Edinburgh Greens via Creative Commons License

By Donna Gardiner

This week (18-25 May) it’s Walk to School Week – where parents and children are encouraged to leave the car at home and experience the benefits of walking to and from school.

The campaign is particularly important given recent evidence which suggests that the number of children who walk to school is falling. The most recent Department for Transport National Travel Survey found that only 42% of children walked to school regularly in 2013, compared to 47% in 1995/97. Indeed, Britain has one of the lowest levels of children walking or cycling to school in Europe.

A recent YouGov survey of 1,000 parents of five- to 11-year olds in Great Britain found that speeding traffic was the main reason that parents no longer let their children walk to school. In particular, 39% felt that school-run traffic was dangerous. Almost two-thirds reported that they would like to see car-free zones outside both primary and secondary schools, as well as 20 mph speed limits in surrounding areas.

20 mph limits and zones

The introduction of 20 mph speed limits and zones has received widespread interest of late, with a number of large schemes, such as the one planned in Edinburgh, capturing the headlines. The Edinburgh scheme is particularly notable for its scale. It covers over 80% of the city’s roads – effectively making 20 mph the default speed for all of its urban areas. Implementation is due to start in late 2015.

At the other end of the UK, the London Borough of Hackney has this week begun the rollout of its own 20 mph scheme, through which more than 99% of the borough’s roads will become subject to 20 mph limits by October 2015.

The Edinburgh and Hackney schemes join a host of others across the UK, including those in inner London, Liverpool, York, Bath, Bristol, Manchester, Newcastle, Brighton, Oxford and Glasgow.

Support for further implementation

Numerous campaign and road safety groups have called for the greater implementation of 20 mph zones and limits across the UK, including the Royal Society for the Prevention of Accidents (RoSPA), Sustrans, the Campaign for Better Transport, CTC – the national cycling charity, 20’s Plenty for Us, The Slower Speeds Initiative and the European Transport Safety Council (ETSC).

The UK Government have also shown support for the wider implementation of 20 mph zones and limits. In 2013, they published revised guidance to make it easier for local authorities to implement 20 mph limits and zones in their areas, and earlier this year, new guidance which further supports 20 mph limits was published by Transport Scotland.

There is also clear evidence of the public’s desire for lower speed limits. A recent YouGov survey found that the majority of respondents supported the introduction of 20 mph speed limits in residential streets (65% support or strongly support) and busy shopping areas and busy streets (72%). Improved road safety and children’s safety were the key reasons for this, along with other reasons – such as making our streets more pleasant to live in, encouraging more walking and cycling, reducing noise and improving the quality of life.

The YouGov survey echoes the findings of the British Social Attitudes Survey 2013, which found 68% of people to be in favour of 20 mile per hour speed limits in residential streets.

Talking of the Hackney scheme, Cllr Feryal Demirci, Cabinet Member for Neighbourhoods and Sustainability, Hackney Council neatly summarises the anticipated benefits of 20 mph zones:

“We strongly believe this 20 mph rollout will be better for everyone. It will mean a safer, calmer and more liveable neighbourhoods for all residents, leading to more walking, cycling and playing outside, which in turn will have a positive impact on health and the community.”

Evidence of the benefits

But does the evidence support these anticipated benefits?

One of the most commonly cited benefit of lower speed limits is improved road safety, resulting from a reduction in the number and severity of collisions. There is widespread evidence that this is the case – for example, research published in the BMJ in 2009 concluded that 20 mph zones were effective measures for reducing road injuries and deaths. Specifically, their introduction was associated with a 41.9% reduction in road casualties, with the effect being greatest in younger children and for the category of killed or seriously injured casualties.

Similar findings have been reported elsewhere, for example, in a review of evidence reported to the London Road Safety Unit, in research by the DfT and by the SWOV Institute for Road Safety Research.

There is also evidence that lower speed limits may help to tackle health inequalities. This is because children and young adults are more at risk of road traffic accidents within poorer localities than in richer urban neighbourhoods. Indeed, in January 2014, Danny Dorling, Halford Mackinder Professor of Geography at the University of Oxford, went as far as to claim that implementing 20 mph speed limits was the main way in which local authorities could effectively improve the health of the local population and reduce health inequalities.

Similarly, research published in the Journal of Public Health in 2014 reported that targeting 20 mph zones in deprived areas may be beneficial. It also concluded that “20 mph zones and limits were effective means of improving public health via reduced accidents and injuries”.

Improved public health is another often cited benefit of lower speed limits. Evidence from Bristol and Edinburgh demonstrates that 20 mph zones do indeed encourage increased levels of physical activity, including walking and cycling, and there is also evidence that they improve resident quality of life, through increased opportunities for social interaction and less noise and air pollution.

The reduced levels of pollution also mean that lower speed limits can be better for the environment.

Finally, there is also some evidence that 20 mph zones may result in increased local economic activity – with improved walking environments having many potential benefits for local business. Research conducted by Living Streets in London also found that pedestrians tended to spend more than those arriving by car.

Driver concerns and attitudes

Despite the evidence in their favour, 20 mph zones are not always welcomed with open arms. There remain a number of concerns about the implementation of 20 mph zones, including fears that they may lead to increased levels of congestion, increased carbon emissions, suffer from a lack of enforcement, increase journey times, and increase emergency response times.

Most of these concerns have been countered by research evidence; however, attitudinal barriers remain. In an analysis of a YouGov survey of public attitudes towards 20 mph zones, Professor Alan Tapp of UWE Bristol, reports that a sizable minority of people (31%) claim that ‘If a 20 mph speed limit is introduced, I may not stick to it’. He also points out that 49% felt that ‘It is just too difficult to stay at 20 mph’ and almost a third of people (30%) thought that 20 mph is an example of a nanny state.

The way forward

So despite the progress that has been made, there is clearly still some way to go before 20 mph limits and zones become a fully accepted part of UK towns and cities. Implementing more 20 mph limits is only the start – it seems that there is also a need for local authorities to tackle the negative perceptions of 20 mph zones held by many drivers in order to ensure that 20 mph limits are adhered to in practice.

Sharing evidence of the positive benefits of 20 mph zones and demonstrating that many of the main concerns associated with them are ill-founded is likely to play an important part in encouraging more positive attitudes, changing driver behaviour, and in turn, make streets safer and more enjoyable for children and adults alike.


 

The Idox Information Service can give you access to further information on improving road safety. To find out more on how to become a member, contact us.

Further reading:

Addressing health inequalities: five practical approaches for local authorities (Perspectives in Public Health, 2014)

Reducing unintentional injuries on the roads among children and young people under 25 years (Public Health England, 2014)

Road safety and public health (The Royal Society for the Prevention of Accidents, 2014)

Achieving safety, sustainability and health goals in transport (Parliamentary Advisory Committee for Transport Safety (PACTS), 2014)

Unlimited aspiration for a calmer city (speed limits) (Local Transport Today, 2011)

Sign of the times (20 mph speed limits in Portsmouth) (Parking Review, 2010)

Review of 20 mph zone and limit implementation in England (Department for Transport, 2009)