Coping with covid: supporting autistic children through and beyond lockdown

The measures put in place to reduce the spread of coronavirus (COVID-19) have impacted almost every aspect of our lives – from our contact with family, friends and loved ones, to how we work, eat, shop, relax and learn.

Adapting to and living with these new measures has been universally challenging.  For autistic people, the changes to daily life associated with the COVID-19 outbreak present a number of additional challenges.  In this blog, we are going to discuss some of these additional challenges, with a particular focus on autistic children and young people.  We also highlight some available supports.

Change of routines

A key feature of autism is the desire to follow certain routines and/or avoid unexpected or unpredictable events. Thus, adjusting to the changes caused by COVID-19 poses particular difficulty for many autistic people, for whom changes to routine may cause additional anxiety, distress and in some cases, emotional overload.

Other autistic people may be distressed because of the lack of structure their day now has – being unable to tell one day from the next, when there are no defining characteristics, can feel particularly disorientating.

Scottish Autism have produced guidance for autistic people and their parents/carers on helping to maintain a routine and the reasons why this is important.  They explain that not only does maintaining a routine provide a sense of security and stability, it can also help to provide a sense of calmness, support emotional self-regulation and encourage health and positive habits.

Many autistic children already use visual schedules and/or calendars to let them know what is happening and what to expect next.  These can be helpful in the current circumstances to help children adapt to new routines at home, and bring some sense of predictability and control to their changed lives.

 Being at home

Another change that COVID-19 has brought about is that more people within the household are at home than is typical – for example, one or both parents/carers may be working from home, along with any siblings/other householders who are usually in education or work.

This may be present challenges for autistic people both in terms of the change to routine and also in terms of sensory issues (e.g. noise).  For example, the household being busier than usual may be more challenging for autistic people as they will subsequently have less time and/or space to themselves, which may be needed in order to self-regulate and/or avoid sensory overload.

Special interests

Many autistic people have special interests that form a large part of their daily routines, and may play a key role in enabling them to relax, self-regulate and recover from sensory overload.

The coronavirus ‘lockdown’ has prevented most outdoors activities from taking place.  Thus many autistic people may have found that their special interest is no longer open to them – from train spotting to bird watching.  The removal of this activity from their life may be experienced as particularly distressing, and make self-regulation more difficult.

School closures

The widespread closure of schools means that many parents of autistic children have found themselves responsible for educating their child at home.

Educating children at home under these new circumstances is challenging for all parents.  However, for parents of autistic children, it presents additional challenges.

Many autistic children require additional support with their learning, and may experience difficulties sustaining concentration.  Autistic children may also have additional support needs such as dyslexia or dyscalculia, which may require the use of specific approaches and/or learning aids.  This presents additional challenges for learning in the home environment for parents that are unaccustomed to providing a full time education for their child.

In school, many autistic children receive additional support in class either in a 1-2-1 or in a small group lesson from practitioners skilled in addressing these additional needs. Replicating this level of support at home is of course challenging for parents who may not be familiar with the techniques used, or skilled in their use.  They may also struggle to provide the necessary 1-2-1 support if they are also expected to work from home themselves, or have other children to care for.

Concern about their child being disproportionately affected by school closures without the skilled support that they receive in schools may also add considerable stress.  For example, the United Nations has recently noted in a briefing paper that children with disabilities and special needs are among those most dependent on face-to-face services and are least likely to benefit from distance learning solutions.

As well as adequately supporting special educational needs, there are also challenges in relation to an autistic child’s ability and/or willingness to undertake schoolwork at home.  Some autistic people have difficulties with what is termed ‘flexible thinking’. This may include, for example, the ability to see something in a new way. Autistic children may be more likely to have a fixed perception of home as distinct from school.  Thus, it may be more difficult for autistic children to accept and adapt to schoolwork being done at home.  Similarly, they may not readily accept the notion that their parent or carer is now also their ‘teacher’, particularly if this person is usually relied upon as being their primary source of comfort and safety when distressed.

Accessible home learning

While this is without a doubt a difficult situation for both autistic people and their parents/carers, the good news is that there is an increasing amount of support and sources of advice available to help support autistic people to adapt and respond to the ‘new normal’ that the coronavirus pandemic has created.

On Twitter, the #accessiblehomelearning hashtag has been trending, with people sharing lots of home learning ideas and support for parents and carers, including tools to support individuals with dyslexia and/or reading and writing difficulties.

Lucy Chetty, Head Teacher at New Struan School has also shared her top tips on education at home.  She notes that different young people will experience the changes to life differently – some will enjoy having more control over their day outside of school, whereas others will miss the routines that they are used to.

According to Lucy, happiness and fun is a key aspect of learning. Thus parents and carers should try to find something that interests and motivates their individual child special interests may be of particular help in this regard.

On a practical level, ensuring clarity is hugely important.  This includes providing clear instructions, and setting out a clear beginning, middle and end to the activity.  Also recommended is ‘chunking down’ activities into smaller pieces so that there are regular breaks, and the use of visual strips and/or timers to help illustrate how long an activity will last.

 Re-opening schools

As we look ahead to the future, there are a number of critical issues that need to be considered to support autistic children and/or adults to transition back out of lockdown.

Transitioning back into the school environment will be challenging for many autistic children, particularly those that have previously found it difficult to attend school, and/or have experience of ‘school refusal’.  For many autistic children, successful school attendance has required a great deal of input from teaching and support staff, parents and the child themselves. This is because the school environment is often experienced as being particularly challenging for a number of different reasons – for example, sensory issues (e.g. noises, smells, lighting), difficulties with processing information, and/or social communication challenges (social skills, etiquette, etc).  Many autistic children also experience heightened levels of anxiety, which is exacerbated by the school environment.

Many autistic children will need additional support with the change of routine back to school days and hours, and also with their anxiety levels – particularly if they have concerns about catching and/or spreading the virus, or if other people within the school are perceived to be ‘not following the rules’.

Additional support for transitioning back into school will be particularly important if the new school environment looks significantly different to that which the child is used to as a result of social distancing measures – for example, by attending different hours or days at school, or having different classroom set ups to allow for social distancing – both of which are options currently being considered by the Scottish Government.

Transitioning out of lockdown

In recognition of the difficulties facing many autistic people and their parents and/or carers, the Scottish Government recently announced new funding to help provide additional support in the form of an extended helpline run by Scottish Autism, and the creation of online social support groups by the National Autistic Society Scotland. 

Researchers at UCL Institute of Education are also currently conducting research into the experiences and needs of parents and carers of autistic children during the pandemic, which will hopefully help inform how they can best be supported as we transition out of lockdown and into the future, where we learn to live alongside coronavirus.

In Scotland, the Education Recovery Group is currently exploring options for stabilising the education of pupils with additional support needs as “an early priority”.

While there is still a degree of uncertainty about how and when lockdown will be eased across the UK, what is certain is that the easing of lockdown – whenever it happens – will present additional challenges for many autistic people and their parents/carers. Listening to the voices of autistic people and their parents and carers will be hugely important if they are to be successfully supported in this transition.


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Supporting perinatal mental health: from peer-support to specialist services

There is a societal expectation that pregnancy and the arrival of a new baby are happy and exciting times.  However, it may come as a surprise to learn that up to 1 in 5 women develop a mental illness during pregnancy or within the first year after having a baby (also known as the ‘perinatal period’).

Up to 1 in 10 women may develop postnatal depression, however, there are actually a number of other mental illnesses that can affect women during pregnancy or following birth.  These include:

  • Antenatal depression
  • Perinatal anxiety
  • Perinatal obsessive compulsive disorder
  • Post-traumatic stress disorder (PTSD)
  • Post-partum psychosis

These illnesses can range from mild to severe.  Left untreated, perinatal mental illnesses can have a devastating effect on mental and physical health.  In fact, suicide is the leading cause of death for mothers during the first year after pregnancy.

The wider impact on children and families

Perinatal mental illnesses can also impact upon children, partners and significant others.  Research shows links to depression in partners, higher rates of divorces, lower levels of emotional and cognitive development and higher levels of behavioural problems and psychological disorders among children.

As well as the high human cost, there are also a number of economic costs associated with failing to address perinatal mental health needs. Research commissioned by the Maternal Mental Health Alliance found that perinatal depression, anxiety and psychosis carry a total long-term cost to society of about £8.1 billion for each one-year cohort of births in the UK.

In comparison, it would cost only an extra £280 million a year to bring the whole pathway of perinatal mental health care up to the level and standards recommended in national guidance.

Access to specialist services is a ‘postcode lottery’

The good news is that most mothers who experience mental ill health can and do make a full recovery.

At present, mild to moderate cases of mental ill health in pregnancy and following birth are treated by the GP through anti-depressants, talking therapies and/or support from a community mental health team.  For more complex or serious illnesses, GPs can make a referral to specialist perinatal mental health services for expert advice and support.  This may involve staying in a specialist psychiatric Mother and Baby Unit (MBU) – where mothers and their baby can be admitted together.

However, despite the high prevalence of, and risks associated with, perinatal mental illness, access to specialist perinatal mental health services across the UK is a postcode lottery.

Maps by the Maternal Mental Health Alliance show that women in around half of the UK have no access to specialist perinatal mental health services.  There are currently no MBUs in Wales or Northern Ireland, meaning mothers with more serious or complex mental illnesses often face either being admitted to a MBU far from home, or being admitted to a general psychiatric ward without their babies, in order to receive treatment.

For those with mild to moderate mental illness, waiting times for NHS talking treatments can be many months.  Lack of awareness means that many cases of mild to moderate mental ill health go undiagnosed and untreated.  There is an urgent need for both greater awareness of mental illness and better access to mental health services across the country.

The role of peer-support

In recognition of and response to the need for better access to mental health support for pregnant and new mothers, a number of local ‘grassroots’ peer-support projects have been established by dedicated volunteers and campaigners.

One such project is Blank Canvas.  Blank Canvas is a creative journaling workshop in Lanarkshire, aimed at women during pregnancy or in the first two years since birth, who are experiencing mental health difficulties.

The project was set up earlier this year by midwife Elaine Connell, together with some of her midwife colleagues, who shared her dedication to improving mental health support for women in the perinatal period.

Elaine was keen to start her own peer support group following her own personal and professional experiences of perinatal mental ill health, and was inspired by the success of other projects focusing on art and creativity, such as Maternal Journal.

As Elaine explains:

It is free… …to access, and each attendee is given their own art kit to keep. We have a different theme each week and have guest speakers coming to do sessions also. During the group they can explore new art materials and create reflections in their journal, whilst chatting over some tea and cake. Each session they will take home a prompt card which can inspire their journalling during the week until the group meets next.”

Blank Canvas is free to access and works on a self-referral basis, with advertising mainly through Facebook.  A local shop and community space (Swaddle in Hamilton) donated a venue space, and all other costs (including materials) have been raised by volunteers committed to the project, through fundraisers such as coffee mornings and participation in the Kiltwalk.

Elaine has conducted an evaluation of the first 10-week block and feedback from participants has been extremely positive.  Word about the project has spread and the next block of Blank Canvas – which started on the 18th September – is fully subscribed (with a waiting list).  As Elaine notes, this is fantastic for the project, but highlights the high level of demand that exists for mental health support among new mothers.

The long term plan is to run 6-week blocks frequently throughout the year, moving to separate antenatal and postnatal sessions in 2020.  Elaine also hopes to start up a creative journaling group aimed at fathers too – noting that father’s mental health is often overlooked.

One of the key things Elaine has learned from the creation of Blank Canvas is that there is a lack of support available for people who want to establish their own peer-support groups:

What has been clear when forming the group, is that there is very little support to establish peer support. There are lots of people who want to help others but who won’t because they don’t know where to begin, or how to access funding, or lack of training opportunities.”

Grassroots peer-support groups are an important source of support for mothers in the perinatal period, particularly in cases of mild to moderate mental ill health, where NHS capacity is strained.

Attending peer-support groups such as Blank Canvas may also have a preventative effect for mums who attend during pregnancy. Statistically, women who experience antenatal anxiety are more likely to develop postnatal depression, and so early intervention could help to reduce that risk.

Urgent need for better access to specialist services

While these projects have been successful, they are aimed predominantly at women experiencing mild to moderate mental ill health.

For those experiencing more complex or serious mental ill health, there remains an urgent need for better access to specialist treatment and support.  The Maternal Mental Health Alliance ‘Everyone’s Business’ campaign calls for all women throughout the UK who experience perinatal mental ill health to receive the care that they and their families need.  Specifically, it demands that:

  • perinatal mental health care should be clearly set at a national level and complied with
  • specialist perinatal mental health teams meeting national quality standards should be available for women in every area of the UK
  • training in perinatal mental health care should be delivered to all professionals involved in the care of women during pregnancy and the first year after birth

Promising signs of progress

There have been some promising signs of progress.  NHS England recently announced their plans to rollout specialist perinatal community services across the whole of England, including the opening of four new Mother and Baby Units.

And in Scotland, the Scottish Government recently announced the rollout of an initial £1 million for perinatal mental health services, as part of a wider £50 million investment in mental health services.  This initial investment will support a range of areas, including supporting the third sector to provide counselling, befriending and peer support for women and their families.  It will also help provide more consistent access to psychological assessment and treatment, by increasing staffing levels and training at Mother and Baby Units, for women with the most serious illnesses.

The Scottish Government also established a Perinatal and Infant Mental Health Programme Board earlier this year.  The PIMH Programme Board aims to help implement the commitments to improving perinatal and infant mental health set out in the 2018/19 Programme for Government and Better Mental Health in Scotland.

Clare Thomson, Everyone’s Business Co-ordinator for Scotland, says “It’s fantastic to see the evidence-based approach to developing community perinatal mental health services and look forward to hearing about the first steps – particularly in the North of Scotland“.

Perinatal mental health is Everyone’s Business

However, there is still much to do, including ensuring that this funding translates into services on the ground.  Wales and Northern Ireland are still without MBUs and there is a pressing need to raise awareness of and address mental illness among fathers.

The cost to the public sector of perinatal mental health problems is 5 times the cost of improving services.  It clearly makes sense to invest in improving this care – not only from an economic perspective, but to help improve the lives of women, their children and families across the country. And while more funding is essential to achieve this, raising awareness of the importance of perinatal mental health really is ‘everyone’s business’.


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Reeling in the year: a look back at 2018

It’s been another busy year for The Knowledge Exchange Blog. We’ve covered a variety of subjects, from housing and the environment to education and planning. So as the year draws to a close, now’s a good time to reflect on some of the subjects we’ve been blogging about during 2018.

Bibliotheraphy, walkability and family learning

We started the year with health and wellbeing in mind. Our first blog post of 2018 highlighted the increasing application of “bibliotherapy”:

“The Reading Agency’s Books on Prescription scheme has been running nationally in England since 2013 and since it started has been expanded to cover Books on Prescription for common mental health conditions, Books on Prescription for dementia, Reading Well for young people and Reading Well for long term conditions. 635,000 people are estimated to have benefited from the schemes.”

In February, we blogged about family learning, where parents engage in learning activities with their children. This can involve organised programmes such as Booksmart, but activities such as reading to children or singing with them can also be described as family learning:

Research from the National Literacy Trust, suggests that “parental involvement in their child’s reading has been found to be the most important determinant of language and emergent literacy”.

In recent years, growing numbers of cities and towns have introduced “shared spaces”, where pedestrians, cyclists and drivers share the same, deregulated space. As we reported in March, the practice has proved divisive, with supporters claiming that shared spaces can improve the urban environment, revitalise town centres, and reduce congestion, while opponents believe that shared space schemes – particularly the removal of kerbs and crossings – are dangerous and exclusionary for vulnerable groups of pedestrians, people with disabilities and those with reduced mobility.

In April, we took the opportunity to promote the Idox Information Service, highlighting a selection of the hundreds of items added to our database since the beginning of 2018. All members of the Idox Information Service have access to the Idox database, which contains thousands of reports and journal articles on public and social policy.

Voters, apprentices and city trees

Local elections in May prompted us to blog about the voting rights of those with age related degenerative mental conditions such as dementia and Alzheimer’s.

“Many people with dementia still hold strong political feelings, and know their own opinion when it comes to voting for political parties or in a referendum. However, the process of voting can often present them with specific challenges. It is up to local authority teams and their election partners to make the process as transparent and easy for people with dementia and Alzheimer’s as possible. Specific challenges include not spoiling the ballot, and the ability to write/ see the ballot paper and process the information quickly enough.”

A year after the launch of the government’s Apprenticeship Levy in June, we highlighted a report from the Reform think tank which suggested that significant reforms were needed to improve England’s apprenticeship system. Among the recommended changes were a renewed focus on quality over quantity, removal of the 10% employer co-investment requirement and making Ofqual the sole quality assurance body for maintaining apprenticeship standards.

The shortage of affordable housing continues to exercise the minds of policy makers, and in July we blogged about its impact on the private rented sector:

“In many cases people view the private rented sector as being a stop gap for those not able to get social housing, and not able to afford a deposit for a mortgage. Although in many instances they may be right, the demographic of those renting privately now is changing, and becoming more and more varied year on year, with many young professionals and families with children now renting privately.”

The long, hot summer of 2018 was one to remember, but its effect on air quality in urban areas underlined the need to combat the pollution in our air. In August, we blogged about an innovation that could help to clear the air:

“Designed by a German startup, a City Tree is a “living wall” of irrigated mosses with the pollution-absorbing power of almost 300 trees. A rainwater-collection unit is built into the City Tree, as well as a nutrient tank and irrigation system, allowing the assembly to water itself.”

Planning, polarisation and liveable cities

September saw another highly successful Scottish Planning and Environmental Law conference. It opened with a thought-provoking presentation by Greg Lloyd, professor Emeritus at Ulster University, and visiting professor at Wageningen University in the Netherlands, who challenged delegates to consider what might happen if the current planning system were to be abolished altogether, to clear the way for a new and more fit-for-purpose planning system.

In October, we focused on the ever-increasing job polarisation affecting the labour market:

In the EU, data shows that between 2002-2014 medium skilled routine jobs declined by 8.9%, whilst high skilled roles rose by 5.4%, and low skilled jobs grew marginally (0.1%). As a consequence, wage inequalities have grown.”

More than half the world’s population now lives in urban areas, presenting significant challenges to local authorities who have to try and make their cities work for everyone. In November, we reported from The Liveable City conference in Edinburgh, which showcased ideas from the UK and Denmark on how to make cities more attractive for residents and visitors:

“A great example of the reinvention of a post-industrial area came from Ian Manson, Chief Executive of Clyde Gateway, Scotland’s biggest and most ambitious regeneration programme. When it comes to recovering from the demise of old industries, the East End of Glasgow has seen many false dawns. As Ian explained, when Clyde Gateway was launched ten years ago, the local community were sceptical about the programme’s ambitions. But they were also ready to engage with the project. A decade on, the area has undergone significant physical generation, but more importantly this has taken place in partnership with the local people.”

Although much has been made of the government’s claim that austerity is coming to an end, many local authorities are still struggling to provide services within tight financial constraints. One of our final blogs this year reported on local councils that are selling their assets to generate revenue:

“In a bid to increase affordable housing supply, for example, Leicester City Council has sold council land worth more than £5m for less than £10 as part of deals with housing associations.”

Brexit means….

Overshadowing much of public policy in 2018 has been the UK’s decision to leave the European Union. Our blog posts have reflected the uncertainties posed by Brexit with regard to science and technology, local authority funding and academic research.

As we enter 2019, those uncertainties remain, and what actually happens is still impossible to predict. As always, we’ll continue to blog about public policy and practice, and try to make sense of the important issues, based on evidence, facts and research.

To all our readers, a very happy Christmas, and our best wishes for a peaceful and prosperous new year.

Better outcomes for children, parents and society – why ‘family learning matters’

mother reading to her son

Improving the circumstances of families from deprived backgrounds has been a key policy focus of government in recent years, with large amounts of resources and funding having been allocated to trying to improve families’ outcomes.

One approach to achieving this, which can lead to positive outcomes for both adults and children is family learning – the importance of which is receiving increasing attention.

What is family learning?

Family learning has been described as “any learning activity that involves both children and adult family members, where learning outcomes are intended for both, and that contributes to a culture of learning in the family”. It can involve both formal and informal provision, such as engagement with programmes such as Booksmart or attending events at libraries and museums.

Parents may not even be aware that activities such as reading to their children from an early age, or singing with them, constitutes a learning activity. Unfortunately, research indicates that a large number of parents do not engage in these activities at all, despite evidence that a home environment which encourages learning and communication is as important an indicator of a child’s achievement as parental income and social status.

Research from the National Literacy Trust, suggests that “parental involvement in their child’s reading has been found to be the most important determinant of language and emergent literacy”.

With real concerns raised over children’s basic skills in recent years, family learning could be part of the solution.

Lack of basic skills

Last year, the National Literacy Trust highlighted analysis which showed that 86% of English constituencies contained at least one ward with “urgent literacy need”.

The latest edition of the Scottish Survey of Literacy and Numeracy showed there was a seven point drop in P7 pupils who can write well or very well between 2012 and 2016. And in November 2016, 79% of Reception teachers in Wales surveyed for Save the Children reported seeing children starting school without the ability to speak in complete sentences. One primary headteacher highlighted the huge need for parental awareness and engagement”.

In comparison, primary schools in Northern Ireland continue to rank among the best in the world in maths. The latest edition of Trends in International Mathematics and Science Study (TIMSS) shows that Northern Irish children are the best in Europe at maths, and sixth best in the world.

The education system in Northern Ireland prioritises a policy of Parental Involvement in Numeracy (PIN), and government policy is to impress upon parents the role that they must play in the development of essential basic skills. The government has also just launched its ‘Giving your child a helping hand’ campaign, which is aimed at increasing parental involvement in the education of their children.

As children spend only around 15% of their time involved in formal learning activities, i.e. in school, there is substantial scope for them to be involved in more informal learning activities that will benefit both their academic and personal development.

Benefits of family learning

Research has shown that family learning interventions could increase children’s overall development levels by up to 15 percentage points for those from deprived backgrounds, and induce an average reading attainment improvement of six months.

Survey findings published by Ofsted also found that participation in family learning courses improved children’s behaviour in class, as well as their relationships with their peers and teachers. Teachers also reported noticing improvements in their pupils’ confidence levels, and their communication and interpersonal skills.

For adults, family learning offers two key positive outcomes for parents: the development of their relationship with their child, and personal skills development.

As with children, the basic skills of adults in the UK remains a cause for concern. In 2016, the Joseph Rowntree Foundation published analysis which suggests that around five million adults in England lack the basic reading, writing and numeracy skills required to complete everyday tasks. Similar deficiencies have been found in Scotland, Wales and Northern Ireland.

Less quantitative evidence exists of the impact of family learning engagement on adult literacy levels. However, it has been found that the average portion of adult learners achieving a qualification on family literacy programmes is higher than those on standard programmes. An evaluation of the Family Learning Impact Fund (FLIF) found that 85% of learners taking part achieved some sort of progression through taking part in a FLIF course, such as going onto a higher level of learning, or new or improved employment.

The Department for Business, Innovation and Skills (BIS) has also highlighted a wider societal impact arising from adults taking part in family learning activities, in terms of participation in volunteering and community activities.

In addition to better outcomes for children, adults and society, family learning can also benefit the government. It is relatively low cost, as it draws on many existing resources such as libraries and museums.

Sheffield City Council, for example, has estimated that for every £1 they spend on family learning, a return on investment (ROI) of £7.58 is generated. This is down to the fact that family learning is a single intervention with the potential to achieve multiple outcomes – not only for parents and children in the present, but for future generations

Final thoughts

It could be argued that the socioeconomic benefits of family learning could help to ease the burden on government resources at the same time as improving families’ outcomes.

Clearly, the benefits of family learning to society and the government can’t be ignored – particularly with increasingly tight budgets.


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Are smartphones damaging young people’s mental health?

by Stacey Dingwall

Last week saw the launch of Universities UK’s #stepchange campaign – a framework that aims to help universities support the mental wellbeing of their student populations. In their case for action as to why the framework was needed, the organisation noted that recent years have seen an increase in the number of student suicides in the UK and the US, as well as an increase in the number of students reporting mental health issues.

Both countries rank in the top 10 in terms of smartphone users across the world, with close to 70% of each country’s population being smartphone owners. And within that percentage, 18-24 year olds are the highest using age group.

Smartphone dependence and its impact

Earlier this year, the Royal Society for Public Health (RSPH) released a report that looked at the impact that the ubiquity of smartphones is having on young people’s mental health, focusing on their social media activity. Some of the headline figures from the report include the fact that over 90% of the 16-24 age group use the internet for social media, primarily via their phones. It is also noted that the number of people with at least one social media profile increased from 22% to 89% between 2007 and 2016. Also on the increase? The number of people experiencing mental health issues including anxiety and depression.

Can rising anxiety and depression rates really be linked to increased internet and smartphone use? The RSPH report notes that social media use has been linked to both, alongside having a detrimental impact on sleeping patterns, due to the blue light emitted by smartphones. This point came from a study carried out at Harvard, which looked at the impact of artificial lighting on circadian rhythms. While the study focused on the link between exposure to light at night and conditions including diabetes, it also noted an impact on sleep duration and melatonin secretion – both of which are linked to inducing depressive symptoms.

So what’s the answer? Smartphones aren’t going away anytime soon, as seen in the excitement that greets every new edition of the iPhone, a decade on from its launch. With children now being as young as 10 when they receive their first smartphone, parents obviously have a role in moderating use. This inevitably becomes more difficult as children grow up, however, and factors such as peer pressure come into play. And it’s also worth acknowledging that heavy smartphone use isn’t restricted to the younger generation – their parents are just as addicted as they are.

Supporting children and young people

In February Childline released figures which stated that they carried out over 92,000 counselling sessions with children and young people about their mental health and wellbeing in 2015-16 – equivalent to one every 11 minutes. Although technology clearly has its impact – the helpline has also reported a significant increase in the number of sessions it carries out in relation to cyberbullying – the blame can’t be laid completely at its door. Although the world has gone through turbulent times in the past, it’s been well documented recently that today’s young people have it worse than their parents’ generation, particularly in terms of home ownership and job stability. Others have pointed towards a loss of community connections in society, and children spending less time outdoors than previous generations – not only due to devices that keep them indoors but also hypervigilant parents.

In fact, perhaps we hear more about mental health issues experienced by children and young people because smartphones and social media have given them an outlet to express their feelings – something previous generations didn’t have the ability to do. What we should be focusing on is how to respond to these expressions – something we’re still not getting right, despite countless reports and articles making recommendations to governments on how they can do better in this area.

Follow us on Twitter to see what developments in public and social policy are interesting our research team. If you found this article interesting, you may also like to read our other articles on mental health.

Who am I? The importance of life story books for looked after children

paper family on hand

By Heather Cameron

Every adopted child in the UK should have a life story book – an account of a child’s life in words, pictures and documents containing information on the child’s birth family, care placements and reasons for their adoption – which is given to them and their new family when preparing for a permanent placement.

Local authorities have a statutory duty to create life story books for all adopted children, providing them with a sense of identity and understanding of their early life before adoption. They are a well-established practice in the UK and most local authorities provide guidance on preparing them.

However, research has found that the quality of life story books varies hugely.

Variation in quality

The research, conducted by the Voluntary Adoption Agency, Coram, in collaboration with the University of Bristol, focused on adopters’ perspectives on their children’s life storybooks, which it identified as lacking from the academic literature.

Although adopters welcomed the idea of life story books, they were critical of their execution. And despite accounts of positive experiences, there was a broad consensus that:

  • many books were of poor quality;
  • children had been poorly prepared to explore their histories;
  • adoption professionals and agencies did not seem to prioritise life storybooks; and
  • adopters felt poorly prepared in how to use and update life storybooks with their children.

While 40% of adoptive parents said their books were ‘good’ or ‘excellent’, a third said they were ‘terrible’.

Issues were raised around lack of communication, opportunity to provide input and what was included in the books. One adopter said “We did not have the opportunity to discuss but what I would have said was this is rubbish – all of it is rubbish”. Another said “I can never show my daughter hers because there is stuff in there that I don’t ever what her to see”.

Another theme to emerge was an excessive focus on the birth family, foster family or social worker rather than the child, and the use of inappropriate language.

For those who regarded their books in a positive light, they believed the story was told well, was age appropriate and honest, and didn’t construct a ‘fairy tale’ that would give the child an unrealistic view.

Invaluable

For adopted children, life story books can be key to providing details of their history and background, providing continuity in their life histories and preparing them for a permanent placement.

Often, they are the only thing an adopted child has by way of personal, accurate and detailed information on their past. As one mother commented on the importance of birth photos, “It’s all they have left of their own babyhood”.

Done well, they can be invaluable, as described by one adopter:

‘a good quality life storybook builds a bridge back to that huge part of her that we didn’t see and it is her main link to her past’

It has therefore been argued that life story work should be prioritised and appropriate support provided.

Ingredients for success

Coram’s research highlighted several key things for successful life story work; one being having staff dedicated to life story work.

Bournemouth has been highlighted as an example of good practice for their life story work. Their separate adoption department appointed a dedicated family support practitioner to take on responsibility for the life story books for children adopted in Bournemouth.

In 2012, the council received an ‘outstanding’ rating by Ofsted and was named as joint adoption service of the year.

Also highlighted by the research, was that gaps in the narrative were not helpful, and support for adopters is paramount, as is training for social workers.

To improve the quality of life story work across the board, Coram’s report urges adoption agencies to make considerably better use of life story books and invest in improved training for professionals, while monitoring the quality of books produced and providing better access to support and guidance for adopters to engage in such important work with their children over time.

Bournemouth illustrates the importance of doing life story work well. And as the research concludes, “linking a child’s past and present is crucial ‘bridging’ work in enabling permanence in placements”.


If you enjoyed reading this, you may also like our previous articles on kinship carers and the value of foster care.

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Parental capacity to change: a new approach to child protection assessments

“Current assessments focus more on harm to the child and its causation than on capacity to change”

The assessments undertaken by social workers on children who are on the edge of care are significant. Very few, if any, assessments are straight forward; many cases are complex, with children and their families facing multiple social barriers, poverty, crime, addiction or mental health issues.

paper family on hand

Very little standardisation of practice exists and the pressure and scrutiny on social workers and their professional judgement can sometimes be unbearable. Increasingly there has been a development in the literature around child protection which suggests that social workers’ assessments should reflect the complexities of family life and should acknowledge efforts of parents to positively adapt their lifestyle in order to allow them to care for their child.

The parental capacity to change, as well as the capacity to parent effectively should be considered in these assessments.

Assessing a combination of motivation and ability, professionals it has been suggested, should work with parents to assess their readiness to accept or deny the need for change when completing their assessments. Provided that change can occur in an appropriate time frame for the child in question, professionals can work with the parents to achieve the best outcome for the child remaining with parents where possible, and returning to parents when possible, if additional action to change is necessary.

bambole di stoffa

C-Change Approach.
There has been a push of late to encourage social services to look at the needs of the parent as much as the needs of the child, and to offer support to families throughout the period the child is with them, particularly when the child has been returned to them after a period in social care.

This approach is about developing relationships between social workers and families and creating realistic, clear and accessible targets for parents, to show their change process, and progress,  and to build an understanding of what is expected of them, with the social worker acting as an assessor but also as a motivator and a facilitator to change. Plans should be long term to create stability and a solid goal, but should also be short term enough to show regular results to keep morale high and to regularly show positive progression.

This new long term approach seeks to change behaviour in parents, but evidencing behaviour change can be difficult. Previously, research suggested that parents changed in part, so as to re-gain custody of their children, but that after time they often relapse which led to the child being taken back into care. This inconsistent approach is something which government and the third sector are trying to address through relationship building and long term consistent and implemented strategies, although it is becoming increasingly difficult given the increased demands on budgets and calls for greater efficiency within the sector.

As a result, guidance on the C-Change model emphasises that there must also be tangible consequences for those who fail to comply or who relapse – it is about altering a mindset and a behaviour – and rewards should be agreed for milestones and achievements in the same way as consequences should be in place for non-compliance.

Image by Jerry Wong, via Creative Commons License

Image by xcode via Creative Commons

Shaking the negativity
The literature which considers parental capacity to change as a way to approach social work assessment highlights a common trend – the apparent failure of social services to provide sufficient support to parents and children once the child has been returned. This in turn, the research suggests, leads to more children being taken back into care.

This is often viewed negatively by the media, who are on the one hand critical of social services for being too quick to intervene and break up family units by removing children from their parents’ care, but on the other are highly critical of their practices and their reluctance or delay in removing children from abusive or distressing situations. This negativity translates into how they are viewed by the public.

Perhaps adopting this model of partnership and change promotion can be a way forward for children and their parents and a way for social workers to reform their practices to create a more standardised transparent way of working where they can share ideas and practice, work in partnership, and be recognised for the good they do and the safeguarding role they play for vulnerable people, rather than the criticism of their inconsistent working or un-compassionate approach, as some make out.


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Fathers and social services – is there a failure to engage?

paper family on handBy Heather Cameron

With failure to effectively engage with fathers repeatedly highlighted in serious case reviews over the years, it is worrying to hear that such failure is still evident within the social work profession.

Failure to engage

Just last week, a High Court judge heavily criticised children’s social workers for their “unprofessional” and “reprehensible” case building against a father whose child was up for adoption. The case involved making a decision on whether to return a two-year-old girl to her father and three siblings or allow her to be adopted by the couple she had lived with for the previous 16 months.

The judgement stated that the social workers’ evidence expressed opinions that they were not qualified to make, describing it as ‘psychobabble’. The judge also noted that this evidence was ‘entirely at odds’ with the evidence of qualified professionals and that the local authority gave insufficient weight to the observations of professionals working with the family.

The social workers were also criticised for continually referencing a “clearly out of date” parenting assessment completed in 2012, stating that this “still apparently colours their view of the father”.

It would seem that there could be deep-seated barriers within the social work profession preventing effective engagement with fathers.

Barriers

In fact, there has been much research around the barriers to fathers’ engagement.

It has been widely suggested that an inability among social workers to believe that a father has changed following past negative behaviour, and traditional assumptions and stereotypes about gender roles, have long played a role in preventing engagement.

An article published in 2009 which explored the representation of fathers in the social work literature argued that a pervasive and influential negative attitude towards fathers is widespread in the social work field.

More recently, a feasibility study highlighted that an analysis of serious case reviews conducted from April 2005 to March 2007 across England found a tendency for professionals to adopt ‘rigid’ or ‘fixed’ thinking, with fathers labelled as either ‘all good’ or ‘all bad’, leading to attributions as to their reliability and trustworthiness. The influence of mothers (which can be good or bad), traditional approaches by the profession in relation to gender and parenting, and fathers being reluctant clients were also cited as barriers.

Such barriers have also been demonstrated by men’s experiences. A study which examined the experiences of fathers involved with statutory social work in Scotland highlighted that respondents reported feeling marginalised from child protection processes and facing barriers to contact with their children. Some men had experienced false accusations of sexual abuse, resulting in long-term involvement with child protection professionals; and some of the respondents felt that they were regarded with suspicion by professionals, with statutory conditions still being applied even after criminal charges had been dropped.

With such long-standing perceptions and approaches within the profession, it would be ill-advised to think that these can be fixed overnight. Nevertheless, there are signs that attitudes are changing.

Changing attitudes

A recent blog by Senior Evaluation Officer at the NSPCC, Nicola McConnell, acknowledges these tendencies within the profession but is confident attitudes are beginning to change. She highlights that only recently had she noticed that on most occasions she had not been interviewing ‘parents’ but almost exclusively mothers:

although services aim to work with parents, for a range of reasons including social organisation and gender expectations, services for children really tend to work with mothers.”

McConnell argues that this can lead to ‘flawed practice’ and discusses how professionals can improve their work with fathers through early engagement and taking a non-judgemental approach.

Facilitators of engagement have been consistently emphasised across the research:

  • Early identification and involvement of fathers;
  • Taking a proactive approach to engagement;
  • Making services relevant to fathers.

And the benefits of effective engagement have also been widely acknowledged. Numerous studies have emphasised the importance of engaging fathers for both children’s outcomes and risk management.

It has recently been highlighted that children with positively involved fathers tend to:

  • Make better friendships with better-adjusted children;
  • Have fewer behaviour problems;
  • Be less involved in criminality and substance abuse;
  • Do better at school;
  • Have greater capacity for empathy;
  • Have higher self-esteem and life-satisfaction.

Good practice

A project highlighted in a recent article in Children and Young People Now which aimed to increase social workers’ engagement with fathers and father figures has had positive results. Following the intervention at one local authority:

  • the percentage of fathers involved in their child’s core assessment rose from 47% to 82%;
  • the percentage of fathers invited to the initial case conference rose from 72% to 90%;
  • and the percentage of fathers whose involvement with the child was discussed at the initial case conference rose from 78% to 100%.

Social workers reported improvements in their practice, including motivating fathers to change problematic behaviour, engaging abusive men in discussion about their behaviour and assessing fathers’ positive qualities. It was also reported that some children had been placed with their fathers instead of being taken into care as a result of their new approach.

So progress is being made, illustrating that it is possible for engagement barriers to be overcome.


 

The Idox Information Service can give you access to further research and good practice on social care services – to find out more on how to become a member, contact us.

Further reading

Caring Dads: Safer Children – interim evaluation report (2014, NSPCC)

Engaging fathers in child welfare services: a narrative review of recent research evidence, IN Child and Family Social Work, Vol 17 No 2 May 2012, pp160-169

Fathers’ involvement in children’s services: exploring local and national issues in Moorlandstown, IN British Journal of Social Work, Vol 42 No 3 Apr 2012, pp500-518

Don’t ignore the father, IN Community Care, No 1818 13 May 2010, pp16-17

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Hitting the glass floor: the impact of social background on earnings

 

By James Carson

How much does family background matter when it comes to your job prospects later in life? That’s the focus of a report from the Social Mobility and Child Poverty Commission which examined the relationship between social background, childhood academic ability and adult success in the labour market.

The study looked at the lives of 17,000 people born in Britain in the same week in 1970 to examine the impact of social background on earnings. It was specifically looking for evidence that initially low attaining children from affluent backgrounds were more likely to succeed in the labour market than their more gifted peers from less advantaged families.

Demography and destiny

The study found that :

  • low attaining children from better-off families have a greater chance of being highly successful in the labour market;
  • high attaining children from less advantaged family backgrounds are less likely to be in a high earning job as an adult.

The report  suggests that more advantaged, better-educated parents ‘hoard the best opportunities’ for their less academically inclined children to help them overtake more gifted but poorer peers.

Examples of how they do this may include:

  • investing time and resources in education to help children showing early signs of low attainment to recover and achieve good qualifications;
  • providing better careers advice and guidance;
  • placing a high value on ‘soft skills’, such as self-confidence, decisiveness, leadership and resilience, which employers ultimately value;
  • prioritising school choice;
  • helping their children into internships and employment through informal social networks.

Breaking the glass floor

Alan Milburn, chair of the Social Mobility and Child Poverty Commission, believes the findings highlight a social scandal:

“It has long been recognised that there is a glass ceiling in British society that prevents children with potential progressing to the top. This research reveals there is a glass floor that inhibits social mobility as much as the glass ceiling.”

Among the suggestions the report makes to remove barriers that block downward mobility, are:

  • reducing inequalities in parental education through adult skills programmes;
  • ensuring children from less advantaged backgrounds have access to the support and opportunities available to their peers, including good careers information and guidance;
  • improving school quality in disadvantaged areas, improving access to high-quality schools and universities and removing financial barriers to higher education;
  • taking action to reduce ‘opportunity hoarding’: including tackling unpaid internships, and encouraging employers to remove barriers in the recruitment process that inadvertently prevent those with high potential from disadvantaged backgrounds being successful.

Levelling the playing field for children from less advantaged families won’t happen overnight. But the report underlines the importance of making an immediate start to ensure adults of the future achieve success because of merit and effort rather than parental wealth and status:

“A society in which the success or failure of children with equal ability rests on the social and economic status of their parents is not a fair one.”


Further reading

We’ve blogged recently on related issues – widening participation to higher education and how inequal access to work experience opportunities is limiting social mobility.

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