Dementia’s impact on those who care

Old man

By Alan Gillies

Recent research has suggested that the rate of growth in the prevalence of dementia may be levelling out as the general health of the population increases. While such findings are encouraging, commentators have pointed out that increasing rates of obesity and diabetes, as well as the fact that people are living longer, means they have to be treated with caution.

Whether we face a continuing increase, a stabilisation or a decline in dementia, for those who are affected it will continue to have a devastating impact. And this includes not just the person with dementia, but also their loved ones and those who care for them.

A recent enquiry to our Ask a Researcher service asked for our help on this very question. As a social worker needing to understand the broader impacts of the disease on the family in order to be to provide appropriate help and support, the enquirer came to us looking for the available research evidence on the impacts of dementia on those caring for them. Our researcher was able to provide a comprehensive roundup of the current literature, highlighting the variety of issues facing carers of those with dementia.

Carers’ working lives

Not all the issues covered were ones that might be immediately obvious, like the practicalities of caring and the emotional impact of seeing a loved one affected. For example, one piece of research we were able to flag up examined the impact on carers’ working lives and workplace relationships.

Over half of respondents to a survey (53%) said that their work had been negatively affected due to their caring responsibilities. The survey highlighted the pressure on those in the prime of their working life, most often women, who are combining care for an older relative, often at a distance, with a range of other family responsibilities.

Minority ethnic carers

We also highlighted research on the way dementia can affect different sectors of the population. One recent study we identified, examined how the migration experiences and life histories of Sikhs living in Wolverhampton impacted on their experiences of caring for a family member with dementia and the barriers to accessing services.

It found that, rather than cultural differences, it was migrants’ experiences and perceptions of social exclusion, their perceived and actual social position as migrants, that affected the ways in which they accessed services.

Communicating with family members who have dementia

As well as drawing together a range of research on carers’ experiences and difficulties, we were able to include examples of initiatives, such as Talking Mats, which can help to improve the experience of caring for a loved one with dementia.

Talking Mats are a simple communication tool, developed at the University of Stirling, to help people with communication difficulties to express their views. It uses a simple system of picture symbols that allow people to indicate their feelings about various options relating to a topic.

Research for the Joseph Rowntree Foundation looked at their use for people with dementia and their family carers. It found that, unexpectedly, although the people with dementia and the family carers both felt more involved in discussions using Talking Mats, the increased feeling of involvement was significantly higher for the carers. Carers repeatedly reported feeling ‘listened to’ by the person with dementia and felt that their loved one could actually ‘see’ their point of view. It found that many family carers said they often choose not to say something that is going to inflame a situation, so instead they say nothing at all. Whereas the Talking Mats tool allowed them time and space to have their say, and helped to organise and structure their conversation with the person with dementia for whom they cared.

Our response to the enquiry provided our member with a speedy and concise roundup of the currently available literature on the issues and difficulties facing those who provide vital care for people with dementia.


Our popular Ask a Researcher enquiry service is one aspect of the Idox Information Service, which we provide to members in organisations across the UK to keep them informed on the latest research and evidence on public and social policy issues. To find out more on how to become a member, get in touch.

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Place-based approaches to service delivery

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Manchester Town Hall: (Photograph, James Carson)

By Alan Gillies

A recent enquirer to our popular Ask a Researcher service sought our help to identify the available research on the concept of place-based or whole-place working.

Place-based approaches have been promoted through, for example, the previous UK government’s whole place community budgets. And in the Scottish context, the 2011 Christie Commission on the Future Delivery of Public Services recommended a place-based, or ‘total place’ approach in order to improve local services and break down institutional silos.

In keeping with its focus on localism, the UK government also piloted a neighbourhood-level version – ‘complementary and integral to the concept of Whole Place community budgets’ – and in April 2014 granted an extra £4.3m of investment to ensuring the model reached 100 new local areas through the Our Place programme.

Principles of place-based or whole-place working

The principles underpinning this model of collaborative place leadership have been identified by the Local Government Association as:

  • building services around people and communities;
  • removing barriers to better outcomes and reduced costs through integrated working across agencies;
  • involving the business and voluntary sectors as equal partners;
  • collaborating to put together a workable whole public sector approach, joint responsibility and shared leadership;
  • local innovation and co-design with central government departments;
  • local delivery and investment mechanisms tailored to local needs and circumstances.

Benefits

The financial savings of such an approach could be significant. In January 2013, a report by Ernst & Young estimated that community budgets in England could deliver a net benefit of between £9.4 and £20.6bn over five years.

In looking at the costs and benefits of the whole place pilots in England in 2013, the NAO warned however that previous attempts such as local-area agreements, multi-area agreements and Total Place “did not lead to widespread or fundamental changes in local public services, or in the relationship between central and local government”.

But as financial pressure on public finances increased, there was even greater incentive than before to assess whether integrated whole-place approaches could help deliver services within increasingly tight budgets. A major driver of the process was therefore to maintain services while making savings.

The potential for place-based or whole-place policies to deliver financial savings does seem to be backed by the available evidence.

However, Localis, as recently as March 2015, has suggested that there is a sense across local government that Whitehall is unwilling to devolve the powers and funds necessary to let whole-place community budgets become a truly successful alternative means of delivering public services. The community budget pilots themselves ‘consistently pointed out that to deliver change on the scale they envisage there has to be change not only at a local level but also in Whitehall.’ (Ernst & Young, 2013)

Current government policy

The current government’s policy of devolution deals with certain areas has been seen as a way of realising the potential of place-based working. The Core Cities Group has called on the government to go further though. It wants the government to undertake a ‘place-based’ comprehensive spending review, looking at the total public resources deployed across a city or city region. It argues that without a similar place-based approach “within Whitehall, Holyrood and Cardiff Bay”, to join up the way different departments work with local agencies and cities, “we will not see the changes people want, need and deserve, in their lives and their cities”.

Local government lessons

In an interesting exercise, the New Local Government Network brought together local government chief executives to explore how place-based, integrated public services could deliver budget reductions and better outcomes for people in a notional ‘Newtown’.

The main learning points identified it its 2014 report were:

  • Working towards outcomes for place requires a different way of thinking and is an incredibly hard thing to do, particularly in relation to prevention, commissioning for outcomes and joining together what different sections of the public sector are doing to deliver outcomes for place.
  • Groups found it tough to move beyond current services and ways of working to develop new approaches to deliver outcomes. Thinking tended to involve ‘less of the same’ or different delivery bodies, rather than whole-scale public service reform.
  • There are a huge number of choices that need to be made and a vast range of stakeholder interactions required, yet few localities have the capacity available to complete this unaided.
  • Few areas have the practical experience to embed customer journey mapping into place based design principles. Perhaps worryingly, the report noted that groups found it difficult to put citizens at the centre of their plans for reform.
  • Despite having ‘red-lines’ of was not possible to change as part of the exercise (e.g. taxation), the groups went outside of these to ask government for additional powers, which suggests that in order to radically change public service in localities, central government reform maybe necessary.

These findings point to some of the challenges that local areas will need to overcome if they want to embrace a place-based approach.


Among the services offered by the Idox Knowledge Exchange, one of the most popular is our Ask a Researcher service.

In the past few months we’ve answered enquiries ranging from older people’s employment to young people’s housing; from rural inequalities to smart cities; and from early intervention to dispute resolution.

The Ask a Researcher service is available on a pay-per-search basis, or access can be included as part of an Information Service subscription. For more information, please contact us.

Happiness and productivity, and how our Ask A Researcher enquiry service can help to increase at least one of these things…

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Image created by Sergio Barros from the Noun Project

by Laura Dobie

It’s the International Day of Happiness today. To mark the occasion on the blog, we’re going to take a closer look at a recent literature search that we did on happiness and productivity, and how the service can help our members to be more productive in their work.

Ask A Researcher

The Idox Information Service offers an Ask A Researcher enquiry service, which is very popular with our members who need to source and synthesise evidence and policy documents to meet tight deadlines. We’re often told that our searches save our members a day’s work or more, were they to conduct the searches and synthesise the research themselves, and they free up our members to work on other areas and achieve more with their day.

They can ask us to search for information on their behalf, and our team of research officers will conduct complex searches of our in-house database (over 200,000 references across a broad range of subjects in relation to economic and social policy), and other sources, where appropriate, to compile lists of relevant references to send back to the enquirer.

We don’t just send on a list of references for you to sift through: our research officers will also produce a research summary to accompany the results, which provides an analysis of the references that we have retrieved. This highlights:

  • Trends;
  • Key findings;
  • Implications for policy and practice; and
  • Significant research reports and articles, which are particularly relevant to the enquirer’s needs.

If the enquirer has asked a specific question, we will do our best to find an answer in the documents that we have sourced and present this in the summary.

Literature search on happiness and productivity

We recently carried out a search on our database for research which examined the link between levels of happiness in organisations and productivity and organisational performance. You can view this sample search here.

This search provides an ideal example of what we’re trying to do with the Ask A Researcher service: rather than simply compiling references, we have specifically highlighted resources in the results (and key words in the abstracts) which help to answer the research question.

The results describe the search terms and date limits which were used, and provide an overview of the content of the resources which were retrieved.

The summary highlights key documents within the results which are particularly pertinent to the research question, including:

  • MacLeod and Clarke’s concept of employee engagement: an analysis based on the Workplace Employment Relations Study, which explores employee engagement and organisational performance. It found that high levels of employee engagement were strongly associated with both financial performance and labour productivity.
  • Healthy staff equal healthy profits, IN Management Today, Jul/Aug 2013, pp56-57, which observes that organisations which look after the wellbeing of their employees see a return in greater commitment and higher productivity. It stressed the importance of effective communication of employee benefits, which can have a significant impact on productivity.
  • A government literature review, which has investigated the business benefits of adopting work-life balance practices, highlighting the positive association between flexible working and productivity and reduced absences, and between family friendly policies and retention and reduced absences. It observes that “A large body of evidence demonstrates that effective outcomes at the level of the individual, including job commitment, ‘happiness’, satisfaction, engagement and, in turn, discretionary effort, are all associated with business benefits such as reduced leaving intentions, fewer absences, less tardiness and improvements to performance and productivity.” (p.viii)

In addition to the results sourced from our own database, we also highlighted research from the University of Warwick, retrieved online, which also demonstrates the link between happiness and productivity.

Hopefully this article has provided some useful insights into the links between happiness and productivity, and demonstrated how our Ask A Researcher service can help our members to source and synthesise research in a short space of time and be more productive at work.

If you’d like to find out more about our Ask A Researcher service, or any other aspect of the Idox Information Service, you can contact us.